Update 6/30/09: I have recently been diagnosed as definite MS from probable MS. Out of limboland for sure. The table got turned when the third MRI showed a new active enhancing lesion. I have got a wonderful neuro, who I am able to see once a month. She is actually a PA working close with the MD who is older and has dealt with MS patients. She is extremely smart and just went to an MS conference. I originally went to these doctors for treatment of neurogenic pain and, since I see them once a month anyway, they decided that they would also treat my MS. I just started Rebif last week.
Hi again. This is Cathy.
I have been seen for several years by a pain neurologist who began to suspect MS when I was being treated for trigeminal neuralgia at his office. It just got worse and worse and turned into atypical facial pain along with some pain on the other side of my face too. It was sharp and jabbing in intensity. I began asking him questions about these other symptoms I had been having this year, mostly the symptoms that started after I had just been in the hospital with peritonitis and started to experience weakness in my legs, trouble walking, and tremors in my hands. I soon developed numbness in my right hand that would last for days and numbness in my hands and feet that would just occur after exercise and heat. They did an MRI which came up suspicious for demyelinating disease with the classical lesions. After that, I had a lumbar puncture that was negative. One night, while typing (I do medical transcription) I began to have myoclonic jerks all night, very very frequent, one on top of another, and had to stop typing. I called my doctor the very next day and he put me on Klonopin. My family doctor tried to manipulate a joint in my neck when he discovered the spasticity and put me on Baclofen. I am supposed to see the neurologist on August 12, 2008, to see what he wants me to do next. Just feel that this is the most likely diagnosis, as the neurologist keeps saying this again and again. I already have been legally blind, but my vision changes drastically from one day to the next, have had very severe eye pain with movement, and see bright lights that circle. Just recently these lights have stopped, so don't know what to think. The primary also wants me to take anti-inflammatories too.
Update on 6/30/09. I was just officially diagnosed 1 month ago. I am both relieved for the diagnosis and scared of what the future will bring. But for now, I appreciate being where I can find support from others in the same circumstances that I am in. I appreciate the timely and courteous responses to my questions, the support, and the kindness offered from the many people in this group. I hope for everyone the best and may God bless everyone in this group.
Aug 02, 2008
Dec 28, 2009