- Dave in WV
- Sex: M
- Data Quality: 1 star
- ALS: 26 yrs
- Ventilator Wheelchair Feeding tube
- Mouth/throat: moderate
- Arms: severe
- Chest: moderate
- Legs: moderate
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- Dave in WV
- Male, 49 years
- Wayne , WV
- Status
- 04/06
- 06/15/09
- 11/18/09
-
ALS Public Registry
- Condition History
- Bulbar
- 06/83
- 02/86
- Non-SOD1 ALS
- My Care Team
- Profile Activity
- 5991 Views
- About Me
- I was very athletic all through school. Began boxing after High School until about 83. I started working road construction in 79 then got a job on a surface coal mine in 81 on the equipment maintenance crew where I was in contact with various petrochemicals daily. I married my high school sweetheart just wks after I was diagnosed. We have two fantastic kids. Daughter born in 87 and son born in 89 only 20mo apart. I was diagnosed in 86 with onset possibly as early as 84. I became vent dependent and got a feeding tube March 93. We continue to be very active despite ALS. Life is an adventure! More…
Primary Symptoms
- Severity of Symptoms
none- mild
- moderate
- severe
Secondary Symptoms
