PatientsLikeMe ™

all
Join Now (It's free!)

Already a member? Log in

Share your experiences, learn from others, and
connect with patients just like you.
Start creating your profile today!
Dave in WV

Dave in WV

Male, 48 years
Wayne , WV

Dave in WV
Data Quality: 1 star
ALS: 25 yrs
Ventilator Wheelchair Feeding tube
Mouth/throat: moderate
Arms: severe
Chest: moderate
Legs: moderate
04/06
: 12/22/07

Diagnosis Summary
Bulbar
06/83
02/86

Forum Activity
1427 posts 2067 helpful marks

About Me
I was very athletic all through school. Began boxing after High School until about 83. I started working road construction in 79 then got a job on a surface coal mine in 81 on the equipment maintenance crew where I was in contact with various petrochemicals daily. I married my high school sweetheart just wks after I was diagnosed. We have two fantastic kids. Daughter born in 87 and son born in 89 only 20mo apart. I was diagnosed in 86 with onset possibly as early as 84. I became vent dependent and got a feeding tube March 93. We continue to be very active despite ALS. Life is an adventure!
Number of times this Profile has been viewed 4347 Views ALS Public Registry ALS Public Registry  
Caregiver
FRS: 11 (latest: 04/07/07)
Progression rate percentile
Spacer 5-10th (rapid)
Spacer 10-25th
Spacer 25-75th (average)
Spacer 75-90th
Spacer 90-95th (slow)
FRSChart
FVC: 0% (latest: 05/13/06)
Warning Levels
Spacer warning
Spacer severe
FVCChart
Weight: 137 lb (latest: 06/04/06)
BMI
Spacer obese
Spacer overweight
Spacer healthy
Spacer underweight
WeightChart
Over The Counter Drug
Reasons Taken
Spacer slow my ALS progress
Spacer general health
Spacer specific symptom
Spacer other
TreatmentChart
Equipment
TreatmentChart
Lifestyle modification
TreatmentChart
Other
TreatmentChart
PatientLabelChart
Primary Symptoms
Severity of Symptoms
Spacer none
Spacer mild
Spacer moderate
Spacer severe
Primary Symptoms
Secondary Symptoms
Secondary Symptoms
Back to top