PatientsLikeMe ™

all
Join Now (It's free!)

Already a member? Log in

Share your experiences, learn from others, and
connect with patients just like you.
Select a community
All Communities
barbaric

barbaric

Male, 38 years
KS, United States

barbaric
Sex: M
Data Quality: 1 star
ALS: 8 yrs
Bi-Pap Wheelchair Feeding tube
Mouth/throat: moderate
Arms: severe
Chest: moderate
Legs: moderate
04/06
: 03/24/08

Diagnosis Summary
Arms
07/99
05/00
06/08/08

Forum Activity
157 posts helpful marks 161 helpful marks

About Me
Hello, My name is Eric. I've been married for thirteen years. We have two wonderful girls, 9 and 11. I use to work in construction, everything from laborer to operating heavy equipment. Those where the good ole days. I was told I had ALS on our 7th wedding anniversary date. I immediately quit work to spend what time I had with wife and kids. Fortunately, I have been a rather slow progressor up to this point. I've always said that the first 5 years were relatively easy, the next 5 will be the real challenge. Take care, Eric
Number of times this Profile has been viewed 855 Views ALS Public Registry ALS Public Registry  
FRS: 8 (latest: 03/24/08)
Progression rate percentile
Spacer 5-10th (rapid)
Spacer 10-25th
Spacer 25-75th (average)
Spacer 75-90th
Spacer 90-95th (slow)
FRSChart
FVC: 31% (latest: 12/11/07)
Warning Levels
Spacer warning
Spacer severe
FVCChart
Weight: 136 lb (latest: 12/11/07)
BMI
Spacer obese
Spacer overweight
Spacer healthy
Spacer underweight
WeightChart
Prescription Drug
Reasons Taken
Spacer treat my ALS
Spacer general health
Spacer specific symptom
Spacer other
TreatmentChart
Supplement
TreatmentChart
Physical Therapy
TreatmentChart
Equipment
TreatmentChart
Other
TreatmentChart
PatientLabelChart
Primary Symptoms
Severity of Symptoms
Spacer none
Spacer mild
Spacer moderate
Spacer severe
Primary Symptoms
Secondary Symptoms
Secondary Symptoms
Back to top