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Patients > amberwell
amberwell
Status
06/08
11/12/09
11/14/09
ALS Ribbon ALS Public Registry
amberwell
Sex: M
Data Quality: 3 stars
ALS: 5 yrs
Bi-Pap Wheelchair Feeding tube
Mouth/throat: mild
Arms: severe
Chest: moderate
Legs: severe
See profile
amberwell
Male, 60 years
Windemere Cumbria, United Kingdom
Condition History
Legs
07/04
02/05
Profile Activity
1353 Views
About Me
Married to Shirley with one son Christopher,Previously a merchant banker then a hotelier,We sold the hotel at the onset of my illness.We now live in a bungalow in the English Lake District.I enjoy all sports,football and rugby. MND first occurred with a dropped foot and then up my leg,across my diapraghm then down the other leg.As a result I cannot walk and have difficulty in breathing.To help me with this I use a bipap to support my breathing and a coughassist to help me cough. I am supported by Shirley Chris and my power w/C. The picture shows me, Shirley,Chris and my brother More…
FRS : 9 latest: 11/12/09
Progression rate percentile
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FVC : 12% latest: 10/29/09
Warning Levels
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Weight : 149 lb latest: 10/13/09
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Prescription Drug
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Primary Symptoms
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Primary Symptoms
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Secondary Symptoms

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