PatientsLikeMe : Dusty Road's ALS Profile

Dusty Road

Female, 66 years
Harwich, MA

Dusty Road: Data Quality: 3 stars; ALS: < 1 yr; Mouth/throat: moderate; Arms: none; Chest: none; Legs: none; See profile

Member since: 06/08
Last updated: 10/02/08

Diagnosis Summary
Onset: Bulbar
First symptom: 02/08
Diagnosis: 05/08

Forum Activity
17 posts 22 helpful marks

About Me
In 2006 I moved from North Carolina back to Massachusetts. I was a CNA in North Carolina for 9 years too. I acquired a job in an office on Cape Cod in 2007, but recently had to give up my job because I could no longer speak on the phone and co-workers could not understand me all the time. I am now with a family doctor on the Cape and he has put me on Rilutek 50 mg and Elavil 50 mg which has helped with my saliva problem and helped with the ALS problem too I pray. I can now be understood at times, but I use an erase board too if I need to be understood. I try to stay positive, but it is hard.