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muskie man

Male, 49 years
Ft. Wayne, IN
muskie man
Data Quality: 2 stars
ALS: 1 yr
Mouth/throat: none
Arms: mild
Chest: none
Legs: moderate
See profile
06/08
: 07/22/08

Diagnosis Summary
Arms
12/06
01/08

Forum Activity
7 posts 17 helpful marks

About Me
I am a male age 49. I have a wonderful,supportive wife, 3 kids, and 2 grandchildren. I adore them all. I am the third member of my family to have ALS. My mother and brother both lived 5 years after their diagnosis. The family has the familial sod1 strain. I just finished a 4 month trial by TDI. I am taking 100 mg a day.My dosage started at 12.5mg and went up slightly from there until i reached 100mg I am very encouraged by my reactions to this medicine. I have a family history that should give me very reliable tract on how this drug is working.
Number of times this Profile has been viewed 157 Views ALS Public Registry ALS Public Registry  
FRS: 39 (latest: 06/11/08)
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FVC: 95% (latest: 07/21/08)
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Weight: 247 lb (latest: 07/21/08)
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