- muskie man
- Sex: M
- Data Quality: 3 stars
- ALS: 2 yrs
- Mouth/throat: none
- Arms: mild
- Chest: mild
- Legs: moderate
- See profile
- muskie man
- Male, 50 years
- Ft. Wayne, IN
- Status
- 06/08
- 10/04/09
- 11/21/09
-
ALS Public Registry
- Condition History
- Arms
- 12/06
- 01/08
- SOD1 L144P
- Profile Activity
- 325 Views
- About Me
- I am a male age 49. I have a wonderful,supportive wife, 3 kids, and 2 grandchildren. I adore them all. I am the third member of my family to have ALS. My mother and brother both lived 5 years after their diagnosis. The family has the familial sod1 strain. I just finished a 4 month trial by TDI. I am taking 100 mg a day.My dosage started at 12.5mg and went up slightly from there until i reached 100mg I am very encouraged by my reactions to this medicine. I have a family history that should give me very reliable tract on how this drug is working.
Primary Symptoms
- Severity of Symptoms
none- mild
- moderate
- severe
Secondary Symptoms
