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Patients > Matt's Nana
Matt's Nana
Status
03/07
10/31/09
10/31/09
ALS Ribbon ALS Public Registry
Matt's Nana
Sex: F
Data Quality: 3 stars
PLS: 16 yrs
Mouth/throat: mild
Arms: mild
Chest: none
Legs: moderate
Type: Upper Motor Neuron
See profile
Matt's Nana
Female, 64 years
Fremont, CA
Condition History
Bulbar
06/93
12/97
Profile Activity
172 Views
About Me
I have a wonderful husband, Craig; I don't know how I could manage without his constant support and help. We have 2 grandsons locally, 1 with autism. We have 4 grandkids in Utah. I am the Vice President of the Spastic Paraplegia Foundation (SPF). SPF includes PLS and HSP (Hereditary Spastic Paraplegia). www.sp-foundation.org. Check us out. I was an avid tennis player in my "previous life". I volunteer at the local hospital but due to my progression, I now work in the gift shop.
FRS : 34 latest: 10/31/09
Progression rate percentile
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FRSChart
FVC : 97% latest: 07/04/09
Warning Levels
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FVCChart
Weight : 158 lb latest: 10/03/09
BMI
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Supplement
Reasons Taken
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Physical Therapy
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Primary Symptoms
Severity of Symptoms
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Primary Symptoms
Secondary Symptoms
Secondary Symptoms