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Lil'Soaphead

Male, 36 years
Brunswick, ME
Lil'Soaphead
Data Quality: 1 star
ALS: 2 yrs
Mouth/throat: none
Arms: mild
Chest: none
Legs: mild
See profile
05/08
: 09/23/08

Diagnosis Summary
?
03/06
12/06

Forum Activity
3 posts helpful marks 1 helpful mark

About Me
I am 36 was a commercial fisherman for 15 years, was in the Army in 1989, have had vetriuloperitoneal shunt surgery twice for Hydrocephelous. My wife of twelve years, Judy, and I went to Washington D.C. thanks to E-Hope, our ALS support group that was started by Jeff Wood, that paid our expences, in an attempt to pass a bill for funding for research for a cure and was encouraged to learn it passed in the house. I was diagnosed in Dec. 2006 with ALS and want to fight this. I at least want to go down swinging, so if there's any suggestions feel free to E-mail me. Live The Dream
Number of times this Profile has been viewed 44 Views ALS Public Registry ALS Public Registry  
FRS: 38 (latest: 09/23/08)
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FRSChart
FVC: 100% (latest: 06/25/08)
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FVCChart
Weight: 180 lb (latest: 06/25/08)
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Prescription Drug
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Primary Symptoms
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