I am a mother of 4,wife,sister,daughter best friend, and alll around the caregiver of the neighborhood. I love animals, angels, cherubs, dragonflies and butterflies. I have been battling symptoms for over 14 years. I have been misdiagnosed in the past with fibromyalgia, severe depression, MS, cerebral palsy, and of course the usual there is nothing wrong it is all in your head go home and tell yourself you are fine and you will be fine.
And now finally someone is listening to me.....my diagnosis is Primary lateral sclerosis and I was told that this is what I have had for over 14 years.
In the last 14 years I have learned to listen to your body. I never felt as though any of my diagnosis were correct. Now I am more at ease with this diagnosis. Everything just kind of fits. My life is my family. If I didn't have them I don't know where I would be. That includes all the friends I have had for so many years that they are no longer just friends, they all have become my family. Other things that have helped me over the years is to eat healthy. More fruits and vegies, and nuts, less meat. Stretching and Yoga are dire. Even on my bad days when I am not able to get out of bed I stretch. Relaxation techniques and massages are great too. I rescue animals when I can and sometimes help the process for abandoned animals to find a new loving family. That is so rewarding. I collect dragonflies, angels, butterflies and cherubs mainly they help me feel relaxed. I am learning to ask for help. Although I am still mostly indepentent I do need help ...... I guess more often than I ask for it. I use an electric wheelchair at the grocery store, on bad days when I can still function I use a cane for balance. Stairs are a challenge.... but I have figured those out now too ... I scoot on my rump step by step. Yes things take a little longer than they used to. And sometimes I have to figure out a new way of doing certain things but I can still do them. Never give in to the disease. Don't let PLS change who you are just the way you do things. Use your mind it is still in great shape although sometimes a little foggy, wipe away the fog and get on with your life and enjoy it.
May 22, 2008
May 11, 2009