Hey everybody!!! I'm anne and I was diagnosed over 10 years ago, and overall, I'm doing o.k, I walk into the occasional wall, but I'm doing better than average according to my neuro. I was on copaxone, but found it difficult keeping up with the daily injections. My neuro wants me to go on tysabri, but I'm not sure. She gave me until Oct. to decide. Until then...I'm drug free! (Its a nice feeling I have to admit) Any info. anyone can give me on tysabri would be greatly appreiciated!!! Thanks!!!
I know I said I wasn't on any ms therapy, and I'm not, but I did mail in my consent form for Tysabri on Thursday July31. My doctor and mostly my father wore me down. Today is Saturday Aug.2,and the front page of the Wall Street Journal has a big story about how more people have died on the drug. Now I'm offically terrified. I've been having a relapse for about a month and had to medicate myself(prednizone) because my doctor doesnt return phone calls and is on vacation. (she will call in a couple of weeks for an appointment?) As far as relapses go...it could be worse. I can't feel hardly anything, and bump into everything! My body is covered in bruises and the prednizone has made me look huge. Overall...I'm not happy at all right now. I need some advise. I want to know if I should go on tysbri or start taking copaxone again. HELP!!! Does anybody know the side effects? And I don't mean the ones listed by the F.D.A or the drug company. The REAL side effects! The ones that only a patient will know. I'm freaking out and talking to my family doesn't really help. They don't have ms...I do...and you do...they just don't know how it feels to be me...or you. I'm 36 and feel 96. I never thought I would feel this old,or face the massive decision I now face. July 11,2008 I walked into the social security office and applied for disability,finally admitting defeat over ms,took my uninsured husband to the E.R July 13,2008,and now Aug.2,2008 I'm trying to decide the rest of my life. I know it sounds awful and dramatic and depressing...I guess thats just my mood lately.Normally I'm cheerful and sarcastic...but today...pathetic and sarcastic.For the first time ever,I will welcome e-mails from complete strangers! Thanks for reading my rant!!!
May 10, 2008
Feb 21, 2011
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