PatientsLikeMe ™

I have the familial form of ALS and I am the 7th person in my family to be diagnosed. I am still able to transfer with assist & use of a slideboard. I'm losing use of my hands & my fingers are contracted I have some arm weakness, but I am still able to talk and swallow. My legs & feet are 95% paralyzed. In the beginning I was in an ALS support group. I have been to the ALS Clinic in Houston, TX, per Dr. Stanley Appel from 2001-2003. I have been involved with Jerry Lewis' telethon every two years for the first 7 years after my diagnosis.