PatientsLikeMe : Hattie's ALS Profile

Hattie

Female, 48 years
Blountsville, AL

Hattie: Data Quality: 1 star; ALS: 8 yrs; Bi-Pap; Mouth/throat: mild; Arms: moderate; Chest: mild; Legs: moderate; See profile

Member since: 04/08
Last updated: 05/13/08

Diagnosis Summary
Onset: Legs
First symptom: 06/00
Diagnosis: 09/01

About Me
I have the familial form of ALS and I am the 7th person in my family to be diagnosed. I am still able to use a walker for a short distance, but mostly use a wheelchair. I'm losing use of my hands and have some arm weakness, but I am still able to talk and swallow. In the beginning I was in an ALS support group. I have been to the ALS Clinic in Houston, TX, per Dr. Stanley Appel, for two years. I am now on Hospice. I am proudest of the fact that I have been involved with Jerry Lewis' telethon every two years for the last 7 years.

More About Me