I am living with a rare disease, Cryoglobulinemia Vasculitis. There is little research done on my disease and no know treatment that has been approved. For the last 13 years I have also been dealing with debilitating autoimmune diseases to many to mention.
Although the life I knew has disappeared from sight I now live a life filled with the enjoyment of living in the moment. My new life is dedicated to finding support, education, research and awareness for my disease and the rare disease community. It will be my life long goal to find support for those alone without support and answers.