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SirIsaac

SirIsaac

Male, 64 years
Coudersport, PA

SirIsaac: Sex: M; Data Quality: 3 stars; PLS: 12 yrs; Wheelchair; Mouth/throat: moderate; Arms: moderate; Chest: mild; Legs: moderate; Type: Upper Motor Neuron; See profile

Member since: 04/08
Last updated: 11/27/08

Diagnosis Summary
Onset: Arms
First symptom: 01/97
Diagnosis: 08/04

Forum Activity
7 posts 6 helpful marks

About Me
My name is Kirk. I live with my wonderful wife of 43yrs who takes care of me. We have 2 children (twins) and 5 grandchildren all of whom live in this area. The cold winters kill me, but we can't tear ourselves away from our home town. We had to move out of the home we built, and into a one-story house in town to accomodate this damned disease, and keep having to make additional adjustments. We were able to do a little traveling from '99 to '02 before it got too bad. I was in management until forced onto disability by depression in '98.

285 Views

ALS Public Registry

ALS Condition

FRS: 21 (latest: 11/28/08)

Progression rate percentile: 5-10th (rapid); 10-25th; 25-75th (average); 75-90th; 90-95th (slow)

FVC

Warning Levels: warning; severe

Weight: 186 lb (latest: 12/08/08)

BMI: obese; overweight; healthy; underweight

Treatments

Prescription Drug

Reasons Taken: treat my ALS; general health; specific symptom; other

Over The Counter Drug

Equipment

Symptoms

Primary Symptoms

Severity of Symptoms: none; mild; moderate; severe

Secondary Symptoms