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Patients > SirIsaac
SirIsaac
Status
04/08
11/19/09
11/11/09
ALS Ribbon ALS Public Registry
SirIsaac
Sex: M
Data Quality: 3 stars
ALS: 12 yrs
Bi-Pap Wheelchair Feeding tube
Mouth/throat: moderate
Arms: moderate
Chest: moderate
Legs: moderate
SirIsaac
Male, 65 years
Coudersport, PA
Condition History
Arms
01/97
06/09
Profile Activity
477 Views
About Me
My name is Kirk. I live with my wonderful wife of 45yrs who takes care of me. We have 2 children (twins) and 5 grandchildren all of whom live in this area. The cold winters kill me, but we can't tear ourselves away from our home town. In 2004 we had to move out of the home we built, and into a one-story house in town to accomodate this damned disease, and keep having to make additional adjustments. We were able to do a little traveling from '99 to '02 before it got too bad. I was in management until forced onto disability by depression in '98. Diagnosis changed 6/25/09 from PLS to ALS.
FRS : 17 latest: 11/11/09
Progression rate percentile
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FVC : 46% latest: 07/24/09
Warning Levels
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Weight : 178 lb latest: 11/02/09
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Prescription Drug
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Over The Counter Drug
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Lifestyle modification
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