I am a married woman with one daughter and two grandchildren -20 and 23 - one of each. Live in a small seaside town just outside the capital Oslo. Have a small house with a tiny garden. The house is slowly being transformed to make it possible for me to stay at home until I die. I have personal assistants coming in 5 days a week (tot. 36 hrs). Further, I have community nurses coming in 6 times a day. Each 3rd month I have appointment with my ALS Team (neurologist, nurse, physioterapeut, ergoterapeut etc.) Also each 3rd month I visit my lung doctor for examinations and checking of bipap