I am a 48 year old, single mother of three. I live in western Montana. My oldest son (27) is engaged to be married, and recently moved to his fiance's home town in Oregon. My daughter (21) is a wonderful, funny girl who has struggled with "invisible" illnesses since childhood. My youngest son is a charming and comedic 8 year old, who brings laughter into my life on a daily basis. I have recently realized the truth in the saying, "laughter is the best medicine", and try to practice it daily.
I have been ignoring things that I now know were "symptoms" of something or another my entire life. The pain and fatigue I've had over time I have always chalked up to being out of shape and getting older. While going through my medical records, I found an entry from 1986 that was clearly (to me, anyway) fibro symptoms! I just got officially diagnosed with Fibro this year.
My cognitive and energy problems began about 2007, and were bad enough to affect my work and school. This continued ... After doing loads of yard work in May of 2010, I had severe, long-lasting bilateral joint pain and thought I had RA (knees, hips, lower back, mid-back, and upper back/neck, shoulders, and elbows). Also developed what turned out to be a ganglion cyst on my left wrist. My hands began to go numb/tingle. Many, many x-rays were taken, as well as the standard blood tests. My tender points were firmly pushed, didn't hurt there as much as elsewhere.
They found moderate arthritis with bone spurs in my neck, but nothing else. Blood tests normal. Diagosis: joint pain NOS... not so helpful. Diagnosed carpal tunnel for the numbness and tingling in my hands.
August, 2011: had just worked for two months over the summer at Home Depot, as a cashier. Leg/foot pain was incredible during this time, excessive sweating was insane... too tired/sore to go to work for 3rd time in two months... had to quit. Could barely walk, all muscles and joints / back hurt again. Could not function at home after work, or on days off - I had to stay off my feet completely just to get the pain level down to be able to go back to work.
Late August -Classes started, didn't have the energy to go to campus, so changed to internet classes. Caught a cold. (Nose continues to be stuffed up on daily basis).
Then found I couldn't concentrate/remember what I was reading; then found that I couldn't read at all - sometimes couldn't remember what words meant, other times couldn't remember one word long enough to put it together with the next word. Stopped attending classes altogether... Exhaustion was too mild a word... (still is, although I occasionally have better days now).
Headaches daily for months since then, low-grade fevers daily, dizziness, weakness, vertigo, muscle twitches, sore ribs, back spasms, typical "fibro fog" symptoms bad enough that I don't drive unless it can't be avoided - I forgot to keep paying attention to lights on two separate occasions, and ended up running red lights! Not cool. A couple of days ago I briefly forgot how to turn on the dryer. Once, in September, I really scared myself and forgot which name went with which of my sons...
My quest for a diagnosis (or six...or twenty!) began in September, 2011... it continues.
Update: Diagnosed with Fibromyalgia - (amongst many other things along the way!)... April 16, 2012.
Nov 16, 2011
Jul 12, 2013