I am a 35 year old male from Indianapolis. I am married with 3 beautiful children. Ive been a musician most of my life, but thought I was gonna be the next Tony Hawk when I was a kid. these days im still doing music, photography and video.
I have always been the picture of health my whole life. I was very active physically through BMX, skateboarding,MX, anything I could ride or have fun with. As a kid I rarely ever got sick, the worst thing I ever had was some sort of lung infection when I was about 10. then at the second formula 1 race in Indianapolis September 28, 2003 (the picture is that day) I noticed my thumb would not quit twitching or cramping up. It has since been slowly progressing up my arm, I still use my arm and hand , but it is much weaker. I am also starting to get atrophy in my right arm and leg. I am still mobile, I ride my bike ,drive, do most the things I used to do just not as strong. I didnt ever go to the dr about it until 2007, I thought it was a hand injury I might have sustained doing the type of sports I was into, apparently it wasnt. Ive been to many different neuros and have had countless MRIs and EMGs.
Sep 11, 2011
Apr 21, 2013
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