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Patients > green1smile
green1smile
Status
03/08
11/16/09
11/07/09
ALS Ribbon ALS Public Registry
green1smile
Sex: F
Data Quality: 3 stars
ALS: 29 yrs
Bi-Pap Wheelchair
Mouth/throat: moderate
Arms: severe
Chest: moderate
Legs: severe
green1smile
Female, 56 years
ganay tikva, israel
Condition History
Legs
07/80
09/06
Profile Activity
521 Views
About Me
i'm now 54 years old.i use a power chair for mobility.i use a bipap st-a about 20-22 hrs per day,suction,power bed,oxygen generator,pulse-ox,neck support,and i've been on the vent now almost 13 years,and still going.i have my ph.d. in neurophysiology,and a master in performing arts in historical wind instruments.i performed for many years and am now unable to play even a simple scale.i still and will always cherish music.
FRS : 6 latest: 10/27/09
Progression rate percentile
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FRSChart
FVC : 28% latest: 10/27/09
Warning Levels
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FVCChart
Weight : 116 lb latest: 11/16/09
BMI
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Prescription Drug
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Over The Counter Drug
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Supplement
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Physical Therapy
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Equipment
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Exercise
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Primary Symptoms
Severity of Symptoms
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Primary Symptoms
Secondary Symptoms
Secondary Symptoms

Atrophy, shoulder muscles patients