PatientsLikeMe ™

Skip over navigation

Join Now (It's free!)

Already a member? Log in

Share your experiences, learn from others, and
connect with patients just like you.

Select a community: All Communities

All Communities
Neurological Conditions
MS (Multiple Sclerosis)
Parkinson’s Disease
ALS (Amyotrophic Lateral Sclerois) / MND (Motor Neuron Disease)
PLS (Primary Lateral Sclerosis)
PMA (Progressive Muscular Atrophy)
PSP (Progressive Supranuclear Palsy)
CBD (Corticobasal Degeneration)
MSA (Multiple System Atrophy)
Devic’s Neuromyelitis Optica
Neuroendocrine Conditions
Fibromyalgia
Mood Conditions
Depression
Anxiety
Bipolar
OCD (Obsessive-Compulsive Disorder)
PTSD (Post-Traumatic Stress Disorder)
Immune Conditions
HIV/AIDS

You appear to have JavaScript disabled in your browser. PatientsLikeMe relies on JavaScript and Cookies to deliver the best possible experience to you. How do I enable JavaScript?

Dianamj

Dianamj

Female, 51 years
Red Deer, AB

Dianamj: Sex: F; Data Quality: 1 star; PLS: 11 yrs; Bi-Pap; Mouth/throat: mild; Arms: moderate; Chest: moderate; Legs: moderate; Type: Upper Motor Neuron; See profile

Member since: 01/07
Last updated: 11/18/08

Diagnosis Summary
Onset: Legs
First symptom: 08/97
Diagnosis: ?

About Me
Hi Friends. While I suffer from Primary Lateral SclerosisI DO attend local ALS meetings and have many friends with ALS that I support. I am on permanent medical retirement after 15 years as a family counselor. I am a 49 year old single Mom with 2 teenage daughters. I love photography, writing, and talking to people. UPDATE: Recently my neuro is concerned and said he won't rule out ALS due to the way my symptoms are going.

85 Views

ALS Public Registry

ALS Condition

FRS: 23 (latest: 11/18/08)

Progression rate percentile: 5-10th (rapid); 10-25th; 25-75th (average); 75-90th; 90-95th (slow)

FVC: 58% (latest: 11/18/08)

Warning Levels: warning; severe

Weight: 145 lb (latest: 06/17/08)

BMI: obese; overweight; healthy; underweight

Treatments

Prescription Drug

Reasons Taken: treat my ALS; general health; specific symptom; other

Supplement

Physical Therapy

Equipment

Lifestyle modification

Other

Symptoms

Primary Symptoms

Severity of Symptoms: none; mild; moderate; severe

Secondary Symptoms