PatientsLikeMe ™

all
Join Now (It's free!)

Already a member? Log in

Share your experiences, learn from others, and
connect with patients just like you.
Start creating your profile today!
SLea

SLea

Female, 64 years
Lower Beeding, Nr Horsham, United Kingdom

SLea
Data Quality: 1 star
ALS: 3 yrs
Feeding tube
Mouth/throat: severe
Arms: moderate
Chest: mild
Legs: moderate
12/06
: 05/17/08

Diagnosis Summary
Bulbar
02/05
07/06

Forum Activity
40 posts 35 helpful marks

About Me
I am married and my husband is my carer. We had 4 children, two of which are twins born when I was 41. They are identical. We have one grand daughter. My family is very supportive. We were garden designers and worked physically very hard, I had muscle discomfort for many years thinking it was wear and tear through work. Our lives have certainly changed for the worse all of a sudden. I have no voice so use a computer to speak for me.
Number of times this Profile has been viewed 200 Views ALS Public Registry ALS Public Registry  
FRS: 16 (latest: 05/17/08)
Progression rate percentile
Spacer 5-10th (rapid)
Spacer 10-25th
Spacer 25-75th (average)
Spacer 75-90th
Spacer 90-95th (slow)
FRSChart
FVC
Warning Levels
Spacer warning
Spacer severe
FVCChart
Weight: 112 lb (latest: 10/22/07)
BMI
Spacer obese
Spacer overweight
Spacer healthy
Spacer underweight
WeightChart
Prescription Drug
Reasons Taken
Spacer slow my ALS progress
Spacer general health
Spacer specific symptom
Spacer other
TreatmentChart
Over The Counter Drug
TreatmentChart
Supplement
TreatmentChart
Physical Therapy
TreatmentChart
Equipment
TreatmentChart
Procedures
TreatmentChart
Other
TreatmentChart
PatientLabelChart
Primary Symptoms
Severity of Symptoms
Spacer none
Spacer mild
Spacer moderate
Spacer severe
Primary Symptoms
Secondary Symptoms
Secondary Symptoms
Back to top