I was diagnosed Nov 04 and the progression has been pretty fast. I am married with three children who are all in college. Prior to diagnosis and until I could I exercised faithfully and took vitamins and supplements. I am now vent dependant and either in bed or a recliner. Currently I am in the hospital for severe abdominal pain and I am unable to open my mouth. I would describe as lockjaw. Since I am unable to update my wife is actually completing this for me. Any information that can be shared would be appreciated.