PatientsLikeMe ™

all
Join Now (It's free!)

Already a member? Log in

Share your experiences, learn from others, and
connect with patients just like you.
Select a community
All Communities
havingfaith

havingfaith

Female, 66 years
springfield, OR

havingfaith
Data Quality: 3 stars
ALS: 2 yrs
Wheelchair
Mouth/throat: moderate
Arms: moderate
Chest: mild
Legs: moderate
03/08
: 09/18/08

Diagnosis Summary
Bulbar
03/06
12/07

Forum Activity
19 posts helpful marks 17 helpful marks

About Me
I AM MARRIED WITH FIVE GROWN CHILDREN.ACTIVE IN CHURCH,MUSICAL FAMILY. THIS ALL STARTED ABOUT MID 06 WITH A HOARSE THROAT THAT CONTINUED FOR A YEAR, THEN ABOUT MARCH 07 I WOKE UP WITH A LIMP IN MY RIGHT FOOT,IT CONTINUED UNTIL I COULD NOT LIFT MY TOES. IT THEN STARTED IN MY LEFT FOOT. THE THUMBS AND INDEX FINGERS LOST STRENGTH. I HAVE BRACES ON BOTH LEGS,HAVE FALLEN MANY TIMES, HAVE TO KEEP YOUR SPIRITS UP AND LEARN TO LAUGH .
Number of times this Profile has been viewed 117 Views ALS Public Registry ALS Public Registry  
FRS: 23 (latest: 09/17/08)
Progression rate percentile
Spacer 5-10th (rapid)
Spacer 10-25th
Spacer 25-75th (average)
Spacer 75-90th
Spacer 90-95th (slow)
FRSChart
FVC: 83% (latest: 09/01/08)
Warning Levels
Spacer warning
Spacer severe
FVCChart
Weight: 162 lb (latest: 09/01/08)
BMI
Spacer obese
Spacer overweight
Spacer healthy
Spacer underweight
WeightChart
Supplement
Reasons Taken
Spacer treat my ALS
Spacer general health
Spacer specific symptom
Spacer other
TreatmentChart
Equipment
TreatmentChart
Other
TreatmentChart
PatientLabelChart
Primary Symptoms
Severity of Symptoms
Spacer none
Spacer mild
Spacer moderate
Spacer severe
Primary Symptoms
Secondary Symptoms
Secondary Symptoms
Back to top