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Patients > sarahezekiel
sarahezekiel
Status
12/06
11/01/09
11/03/09
ALS Ribbon ALS Public Registry
sarahezekiel
Sex: F
Data Quality: 3 stars
ALS: 9 yrs
Mouth/throat: moderate
Arms: severe
Chest: none
Legs: moderate
sarahezekiel
Female, 43 years
London , United Kingdom
Diagnosis
Arms
02/00
04/00
My Care Team
Profile Activity
1979 Views
About Me
I was diagnosed whilst pregnant with my second child. I'm now divorced and live with my children, aged 12 and 9. After an initial rapid progression I'm stable now and lead an active life. I'm still able to walk with assistance but cannot use my arms. I have 24 hour care to help the children and I. I operate my computer with a chin switch and use the program EZ Keys. I try not to think about my illness and live life as normally as possible. I enjoy writing and giving presentations to raise awareness of MND/ALS. Please read more about me here: http://www.sarahezekiel.com More…
FRS: 20 (latest: 11/01/09)
Progression rate percentile
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FRSChart
FVC: 90% (latest: 11/01/09)
Warning Levels
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FVCChart
Weight: 115 lb (latest: 11/01/09)
BMI
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Prescription Drug
Reasons Taken
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Supplement
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Physical Therapy
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Procedures
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Primary Symptoms
Severity of Symptoms
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Primary Symptoms