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sarahezekiel

sarahezekiel

Female, 43 years
London , United Kingdom

sarahezekiel
Sex: F
Data Quality: 3 stars
ALS: 8 yrs
Mouth/throat: moderate
Arms: severe
Chest: none
Legs: moderate
12/06
: 11/21/08

Diagnosis Summary
Arms
02/00
04/00

Forum Activity
754 posts helpful marks 1108 helpful marks

About Me
I was diagnosed whilst pregnant with my second child. I'm now divorced and live with my children, aged 11 and 8. After an initial rapid progression I'm stable now and lead an active life. I'm still able to walk with assistance but cannot use my arms. I have 24 hour care to help the children and I. I operate my computer with a chin switch and use the program EZ Keys. I try not to think about my illness and live life as normally as possible. I enjoy writing and giving presentations to raise awareness of MND/ALS. Please read more about me here: http://www.myspace.com/sarahezekiel
Number of times this Profile has been viewed 1448 Views ALS Public Registry ALS Public Registry  
FRS: 21 (latest: 11/21/08)
Progression rate percentile
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FVC: 90% (latest: 11/21/08)
Warning Levels
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Weight: 115 lb (latest: 11/21/08)
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