PatientsLikeMe ™

all
Skip over navigation
Join Now (It's free!)

Already a member? Log in

Share your experiences, learn from others, and
connect with patients just like you.
Select a community
All Communities
sarahezekiel

sarahezekiel

Female, 43 years
London , United Kingdom
sarahezekiel
Sex: F
Data Quality: 3 stars
ALS: 8 yrs
Mouth/throat: moderate
Arms: severe
Chest: none
Legs: moderate
See profile
12/06
: 11/21/08

Diagnosis Summary
Arms
02/00
04/00

Forum Activity
754 posts helpful marks 1108 helpful marks

About Me
I was diagnosed whilst pregnant with my second child. I'm now divorced and live with my children, aged 11 and 8. After an initial rapid progression I'm stable now and lead an active life. I'm still able to walk with assistance but cannot use my arms. I have 24 hour care to help the children and I. I operate my computer with a chin switch and use the program EZ Keys. I try not to think about my illness and live life as normally as possible. I enjoy writing and giving presentations to raise awareness of MND/ALS. Please read more about me here: http://www.myspace.com/sarahezekiel
More About Me
Number of times this Profile has been viewed 1448 Views ALS Public Registry ALS Public Registry  
FRS: 21 (latest: 11/21/08)
Progression rate percentile
Spacer 5-10th (rapid)
Spacer 10-25th
Spacer 25-75th (average)
Spacer 75-90th
Spacer 90-95th (slow)
FRSChart
FVC: 90% (latest: 11/21/08)
Warning Levels
Spacer warning
Spacer severe
FVCChart
Weight: 115 lb (latest: 11/21/08)
BMI
Spacer obese
Spacer overweight
Spacer healthy
Spacer underweight
WeightChart
Prescription Drug
Reasons Taken
Spacer treat my ALS
Spacer general health
Spacer specific symptom
Spacer other
TreatmentChart
Supplement
TreatmentChart
Physical Therapy
TreatmentChart
Procedures
TreatmentChart
PatientLabelChart
Primary Symptoms
Severity of Symptoms
Spacer none
Spacer mild
Spacer moderate
Spacer severe
Primary Symptoms
Back to top