I was dx with MS the second day after returning from our honeymoon. My wife is suffering from fibromyalgia and CFS.
I have always been an outgoing and energetic fella but now spend my days at home with my wife doing odd jobs when my condition lets me and caring for my wife and kids.
Everything in life now needs to be balanced so as to ensure I am not left without energy to complete other things. However, very happy with little victories and accomplishments which occur on a daily basis, not always but at least I acknowledge them! :)
It's 9/5/2012 and my MS has appeared to have stabilised, I have no new lesions and no active ones. In 3 months I will be starting a new drug called Gilenya.
My history with previous treatments has not been great, so I am hopeful that Gilenya will do what it is supposed to do. Tysabri has been the only drug that has worked to date.
I have started coin & stamp collecting to give myself something to do that does not require a great deal of energy and it has been rewarding.
I must say that my short term memory is much worse than I thought - it is fine when I get triggers to help recall things but trying to recall things on my own can be quite difficult at times.
Oct 23, 2010
Dec 03, 2012