I was diagnosed Sept 11th of 2007. We were hoping it was MMN (multifocal motor neuropathy). After 3 IVIg treatments and some time, the doc's agreed I most likely have ALS. It started in my right hand with thumb weakness and progressed to affect my voice and tongue. It's almost been a year since my first symptoms and I am doing very well. At The Lahey Clinic I was told I have a very fast progressing bulbar ALS. I feel the combination of supplements, diet change, Rilutek and Lithium, and the support and assistance of my family, and friends has helped me stay this functional and healthy.
Feb 22, 2008
Apr 23, 2011
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