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MaineSkiMan

Male, 31 years
Portland, ME

MaineSkiMan
Sex: M
Data Quality: 2 stars
ALS: 1 yr
Mouth/throat: moderate
Arms: moderate
Chest: none
Legs: none
02/08
: 12/29/08

Diagnosis Summary
Bulbar
06/07
10/07

About Me
I was diagnosed Sept 11th of 2007. We were hoping it was MMN (multifocal motor neuropathy). After 3 IVIg treatments and some time, the doc's agreed I most likely have ALS. It started in my right hand with thumb weakness and progressed to affect my voice and tongue. It's almost been a year since my first symptoms and I am doing very well. At The Lahey Clinic I was told I have a very fast progressing bulbar ALS. I feel the combination of supplements, diet change, Rilutek and Lithium, and the support and assistance of my family, and friends has helped me stay this functional and healthy.
Number of times this Profile has been viewed 84 Views ALS Public Registry ALS Public Registry  
FRS: 29 (latest: 12/29/08)
Progression rate percentile
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FVC: 113% (latest: 03/17/08)
Warning Levels
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FVCChart
Weight: 150 lb (latest: 12/29/08)
BMI
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Prescription Drug
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Primary Symptoms
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