Haveing this for so long and it is still hard to find a happy medium. you know when you have a good day you are going to be down for at least a day or two. and that is so depressing. It is still hard for me to find that area to just glide and not over due on the good days so hard. this condition is also so hard to explain to other ppl for u look ok. there are days I sleep all day and night. and then there are those times I can just go go go. grrrrrr now Im to the point I do not feel my meds are working any more I have been on them for so long. I cant loose any wieght. and am so frustrated