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Table of patients and their summary data

Status Conditions
acevette
Sex: M
Data Quality: 1 star
ALS: 3 yrs
Bi-Pap Wheelchair
Bulbar: mild
Arms: severe
Chest: mild
Legs: moderate
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tank girl
Data Quality: 3 stars
  • Sex: Female
  • Age: 28y
Condition: Wegener's granulomatosis 4 additional condition(s)
Quality of Life:
  • Mental: Moderate
  • Physical: Mild
I am: Very good
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Interested in Relationships, and Working with my Condition

trice
Data Quality: 2 stars
  • Sex: M
  • Age: 43y
  • Duration: 30 yrs
PRO survey: PRO 3
Quality of Life:
  • Mental: None
  • Physical: None
Surgery type: Vagus Nerve Stimulation (VNS)
0 seizures
this week
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Interested in Advocacy, and Research

giantsfan4ever
Sex: F
Data Quality: 2 stars
MS: 12 yrs
Type: Relapsing-Remitting
Sensation: Severe
Overall: Moderate
Cognition: moderate
Vision: moderate
Speech: moderate
Swallowing: moderate
Upper limb: moderate
Walking: moderate
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Interested in Alternative Medicine, and Veterans' Issues

corkey3160
Sex: F
Data Quality: 1 star
Major Depressive Disorder
Depression: 2
Mania: 1
Emotional: 1
Anxiety: 0
Compulsion: 0
External Stress: Severe
Rx Therapy
57 F
Function: Moderate
Distress: Low
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Interested in Advocacy, Fundraising, Research, and Veterans' Issues

djohnson
Sex: F
Data Quality: 3 stars
Pain: Some
Fatigue: Some
Sleep: Some
Stiffness: Some
function: All
external_stress: Some
Stickman: some
Description:F61y
FM:27y Dx
CFS:27y Dx
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Interested in Alternative Medicine, Faith, Research, and Working with my Condition

jk1946
Sex: M
Data Quality: 0 stars
Parkinson's: 6 yrs
Hoehn-Yahr 2 Type: Parkinson's disease On
Mouth/throat: mild
Arms: mild
Chest: none
Legs: mild
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jr42
Sex: M
Data Quality: 3 stars
PMA: 11 yrs
Bulbar: none
Arms: severe
Chest: mild
Legs: moderate
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Interested in Research, and Working with my Condition

safetrek
Sex: M
Data Quality: 1 star
ALS: 10 yrs
Wheelchair
Bulbar: none
Arms: severe
Chest: none
Legs: moderate
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akmeck11
Data Quality: 1 star
  • Sex: F
  • Age: 36y
  • Duration: 21 yrs
PRO survey: PRO 0
Quality of Life:
  • Mental: Mild
  • Physical: None
1 seizure
this week
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strapples
Data Quality: 3 stars
  • Sex: Male
  • Age: 21y
Condition: Rett Syndrome 4 additional condition(s)
Quality of Life:
  • Mental: Mild
  • Physical: Severe
I am: Very bad
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Interested in Advocacy

sweetad
Sex: F
Data Quality: 3 stars
MS: 27 yrs
Type: Relapsing-Remitting
Relapse: Moderate
Sensation: Moderate
Overall: Moderate
Cognition: moderate
Vision: moderate
Speech: moderate
Swallowing: moderate
Upper limb: moderate
Walking: moderate
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dirtydingusus
Data Quality: 1 star
  • Sex: M
  • Age: 39y
  • Duration: 40 yrs
PRO survey: PRO 0
Quality of Life:
  • Mental: Unreported
  • Physical: Unreported
? seizures
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Interested in Alternative Medicine, Faith, Research, and Working with my Condition

ulalalaura
Data Quality: 3 stars
  • Sex: Female
  • Age: 17y
Condition: Autoimmune Hepatitis 5 additional condition(s)
Quality of Life:
  • Mental: Mild
  • Physical: None
I am: Very good
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Interested in Research, and Working with my Condition

Sapphyr
Sex: F
Data Quality: 3 stars
MS: 14 yrs
Mentor
Type: Relapsing-Remitting
Sensation: Mild
Overall: Moderate
Cognition: moderate
Vision: moderate
Speech: moderate
Swallowing: mild
Upper limb: mild
Walking: severe
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