PatientsLikeMe : Ropinirole Treatment Report

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What is Ropinirole?

Ropinirole is an anti-Parkinson's agent used to treat the signs and symptoms of idiopathic Parkinson's disease (PD). It is also indicated for the treatment of moderate-to-severe primary Restless Legs Syndrome (RLS).

Reasons taken & Efficacy

Reasons and Efficacy
Reasons taken	# of patients	# of patients evaluated by
Treat Parkinson's	436	126
Stiffness/Spasticity	33	7
Other	28	7
tremor	13	4
Mobility	11	5
Parkinson's Disease	10	3
Restless Legs Syndrome (RLS)	6	0
Support another treatment	4	1
Tremors	4	1
General health	3	3
disease-related symptoms	2	1
tremor, hand	2	1
REM Sleep Behavior Disorder	1	0
All PD Symptoms	1	1
Tremor, left arm	1	1
Fatigue	1	0
Tremor, left hand	1	0
Tremor in left hand	1	0
To treat PD	1	1
falling down	1	1
Anxiety	1	0
alertness	1	1
Weakness/slowness (asthenia)	1	0
Freezing of gait	1	0
Mobility	1	0
Pain, chronic	1	0
On to off fluctuations worsening	1	1
Tried it to see if I could tolerate it-was a zombie for the first 16 hours, and half asleep the other 8	1	0
Reduce on/offs	1	0
Parkinson's	1	0
Constipation	1	0
to help reduce levodopa	1	0
Slowness	1	1
Hoarseness	1	1
Stiffness	1	0

See all 35 reasons taken ▼

See all 518 patients currently taking Ropinirole

Mouse over the table for more information

Side Effects

Side effects as an overall problem

Severe	21	13%
Moderate	55	35%
Mild	55	35%
None	26	17%

Most commonly reported side effects

Daytime sleepiness	66	42%
Nausea	50	32%
Fatigue	43	27%
tired	31	20%
swollen feet and ankles	20	13%
Indigestion	15	10%
Constipation	14	9%
Aches and pains	13	8%
lack of concentration	12	8%
Sweats	11	7%
Muscle cramps	10	6%
Dizziness	10	6%
Tremors	6	4%
Hypersexuality	6	4%
Somnolence	5	3%
unmodivated	5	3%
gastrointestinal	4	3%
Back pain	3	2%
difficulty moving	3	2%
Insomnia	2	1%
compulsiveness	2	1%
Weight gain	2	1%
Muscle twitching (fasciculations)	2	1%
Obsessive compulsive disorder OCD	1	1%
Dry mouth (xerostomia)	1	1%
sweet tooth	1	1%
Can't recall words or enterrupted throught process	1	1%
Acid reflux (GER gastroesophageal reflux)	1	1%
Diarrhea	1	1%
throat tightening	1	1%
difficulty in sleeping	1	1%
always tired	1	1%
affects memory	1	1%
Low blood pressure (hypotension)	1	1%
Dyskinesia	1	1%
Cramps, foot and leg	1	1%
swollen legs	1	1%
Sleepiness	1	1%
ankle swelling	1	1%
Sexual arousal	1	1%
Swelling in feet and feeling of numbness up to shin	1	1%
Headaches	1	1%
Pain, fingers	1	1%
EXPENSIVE	1	1%
Eyes water	1	1%
increased shopping	1	1%
Paranoia	1	1%
Dystonia	1	1%
gambling	1	1%
shopping	1	1%
face grimace	1	1%
fainting	1	1%
Impulsive behaviors	1	1%
Nerve pain (neuropathic pain)	1	1%
Dizziness/hypotension upon standing	1	1%
foot dystonia	1	1%
shyness	1	1%
edema in hands and feet	1	1%
Swollen feet	1	1%
knee pain and stiffness	1	1%
light headed	1	1%
Cramps, legs	1	1%

Mild
Moderate
Severe

See all 62 reported side effects ▼

Dosages

Top 10 dosages based on patients currently taking Ropinirole. See all 46 dosages ►

0.25 mg-0.5 mg-1 mg daily	0.25mg as needed	1.5 x 0.25 mg-0.5 mg-1 mg daily	1 mg as needed	2mg as needed	3 x 0.25 mg-0.5 mg-1 mg daily	4 x 0.25 mg-0.5 mg-1 mg daily	6 x 0.25 mg-0.5 mg-1 mg daily	as needed	daily	0.15 mg daily	0.25 mg daily	0.5 mg daily	0.75 mg daily	1 mg daily	1.25 mg daily	1.5 mg daily	2 mg daily	2.25 mg daily	3 mg daily	4 daily	4 mg daily	4.5 mg daily	5 mg daily	6 mg daily	7 mg daily	8 mg daily	9 mg daily	10 mg daily	12 mg daily	14 mg daily	15 mg daily	16 mg daily	18 mg daily	20 mg daily	21 mg daily	22 mg daily	23 mg daily	24 mg daily	25 mg daily	26 mg daily	28 mg daily	32 mg daily	54 mg daily	200 mg daily	300 mg daily
1	1	1	1	1	1	1	1	1	5	1	18	8	7	14	1	9	31	4	28	1	41	1	4	63	3	62	32	5	72	2	23	31	12	21	3	1	1	21	2	1	1	2	1	1	1

Stop Reasons

Why Patients Stopped Taking Ropinirole (multiple reasons could be selected)
Reason	# Patients	Percentage of patients
Side effects too severe	86	49%
Doctor's advice	41	23%
Did not seem to work	36	20%
Other	30	17%
Expense	8	5%
Not indicated	8	5%
Course of treatment ended	6	3%
Personal research	4	2%

See all 170 patients who’ve stopped taking Ropinirole

Duration See details about how long patients take this treatment ▼

Currently Taking Ropinirole

0-1 month	1-3 months	3-6 months	6 months-1year	1-2 years	2 years or more
4	16	29	88	91	91

Stopped Taking Ropinirole

0-1 month	1-3 months	3-6 months	6 months-1year	1-2 years	2 years or more
17	32	36	33	24	32

Adherence, Burden & Cost See details from patient evaluations ▼

Adherence

Taking treatment as prescribed

Always	118	75%
Usually	32	20%
Sometimes	6	4%
Never	1	1%

Burden

Difficulty being on treatment

Very	13	8%
Somewhat	30	19%
A little	39	25%
Not at all	75	48%

Cost

Paid out of pocket

$200+	3	2%
$100-199	3	2%
$50-99	16	10%
$25-49	27	17%
< $25	52	33%

See more information, including instructions, precautions, side effects, and interactions.

Patient Evaluations

See all 157 patient evaluations

seasea

Sex: F

Mouth/throat: none

Arms: mild

Chest: none

Legs: mild

See profile
seasea

4 mg daily

since Sep 10, 2009
Efficacy Slight for Other
Side Effects Mild
Advice/Tips No impact that I can notice. My hair has started to fall out. I don't know if that is a side effect of this medication. See full evaluation

Bullydawg3

Sex: F

Mouth/throat: mild

Arms: mild

Chest: mild

Legs: mild

See profile
Bullydawg3

since Aug 30, 2008
Efficacy Moderate for Treat Parkinson's
Side Effects Moderate
See full evaluation

tchrterri

Sex: F

Mouth/throat: mild

Arms: mild

Chest: mild

Legs: mild

See profile
tchrterri

25 mg daily

since Aug 03, 2008
Efficacy Can't tell for Treat Parkinson's
Side Effects Severe
Advice/Tips Make sure when you start a drug like this that you have people around you in case you have a severe reaction like I did. These reactions may be rare, but wh... See full evaluation

See all 157 patient evaluations

Forum

See 30 topics tagged with Requip

See 1 topics tagged with Ropinirole

There are 1767 posts in our forum about Ropinirole. Join now and see what people are saying.

Report created on November 20, 2009.

0.25 mg-0.5 mg-1 mg daily	0.25mg as needed	1.5 x 0.25 mg-0.5 mg-1 mg daily	1 mg as needed	2mg as needed	3 x 0.25 mg-0.5 mg-1 mg daily	4 x 0.25 mg-0.5 mg-1 mg daily	6 x 0.25 mg-0.5 mg-1 mg daily	as needed	daily	0.15 mg daily	0.25 mg daily	0.5 mg daily	0.75 mg daily	1 mg daily	1.25 mg daily	1.5 mg daily	2 mg daily	2.25 mg daily	3 mg daily	4 daily	4 mg daily	4.5 mg daily	5 mg daily	6 mg daily	7 mg daily	8 mg daily	9 mg daily	10 mg daily	12 mg daily	14 mg daily	15 mg daily	16 mg daily	18 mg daily	20 mg daily	21 mg daily	22 mg daily	23 mg daily	24 mg daily	25 mg daily	26 mg daily	28 mg daily	32 mg daily	54 mg daily	200 mg daily	300 mg daily
1	1	1	1	1	1	1	1	1	5	1	18	8	7	14	1	9	31	4	28	1	41	1	4	63	3	62	32	5	72	2	23	31	12	21	3	1	1	21	2	1	1	2	1	1	1

0.25 mg-0.5 mg-1 mg daily	0.25mg as needed	1.5 x 0.25 mg-0.5 mg-1 mg daily	1 mg as needed	2mg as needed	3 x 0.25 mg-0.5 mg-1 mg daily	4 x 0.25 mg-0.5 mg-1 mg daily	6 x 0.25 mg-0.5 mg-1 mg daily	as needed	daily	0.15 mg daily	0.25 mg daily	0.5 mg daily	0.75 mg daily	1 mg daily	1.25 mg daily	1.5 mg daily	2 mg daily	2.25 mg daily	3 mg daily	4 daily	4 mg daily	4.5 mg daily	5 mg daily	6 mg daily	7 mg daily	8 mg daily	9 mg daily	10 mg daily	12 mg daily	14 mg daily	15 mg daily	16 mg daily	18 mg daily	20 mg daily	21 mg daily	22 mg daily	23 mg daily	24 mg daily	25 mg daily	26 mg daily	28 mg daily	32 mg daily	54 mg daily	200 mg daily	300 mg daily
1	1	1	1	1	1	1	1	1	5	1	18	8	7	14	1	9	31	4	28	1	41	1	4	63	3	62	32	5	72	2	23	31	12	21	3	1	1	21	2	1	1	2	1	1	1

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Ropinirole Treatment Report