Ropinirole Treatment Report : PatientsLikeMe

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Home > Community Treatment Reports and Side Effects > Ropinirole Treatment Report

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What is Ropinirole?

Ropinirole is an anti-Parkinson's agent used to treat the signs and symptoms of idiopathic Parkinson's disease (PD). It is also indicated for the treatment of moderate-to-severe primary Restless Legs Syndrome (RLS).

Reported Purpose & Efficacy

Reasons and Efficacy
Purpose	# of patients	# of patients with evaluations Efficacy
Parkinson's Disease	738	267
Restless feeling in legs	217	57
RLS (Restless Legs Syndrome)	75	11
Other	64	12
Stiffness/Spasticity	49	13
Tremor	28	15

See all 77 reasons taken ▼

See all 1058 patients currently taking Ropinirole

Mouse over the table for more information

Reported Side Effects

Side effects as an overall problem

Severe	78
Moderate	112
Mild	99
None	97

Commonly reported side effects, conditions, and hospitalizations associated with Ropinirole

See all 187 reported side effects ▼ See top 6 reported side effects ▲
Daytime sleepiness	83	83
Nausea	75	75
Fatigue	50	50
Tiredness	33	33
Swelling in feet	31	31
Swelling in ankles	28	28
Indigestion	19	19
Constipation	16	16
Dizziness	16	16
Pain	15	15
Lack of concentration	15	15
Sweating	13	13
Muscle cramps	13	13
Excessive daytime sleepiness (somnolence)	11	11
Compulsive behaviors	10	10
Hypersexuality	9	9
Sleepiness	8	8
Somnolence	8	8
Headaches	7	7
Weight gain	7	7
Insomnia	7	7
Drowsiness	6	6
Nausea and vomiting	6	6
Tremor	6	6
Swelling in legs	5	5
Low blood pressure	4	4
Cramps in legs	4	4
Edema (fluid retention)	4	4
Back pain	4	4
Hospitalization	4	4
Dyskinesia	3	3
Difficult to move or walk	3	3
Muscle twitching (fasciculations)	3	3
Acid reflux	3	3
Swelling in legs, feet and ankles	3	3
Dry cough	3	3
Lack of motivation	3	3
Anxiety and frustration	3	3
Gastrointestinal discomfort	3	3
Compulsive shopping or spending	3	3
Sleep disturbances	3	3
OCD (Obsessive-Compulsive Disorder)	3	3
Anxious mood	3	3
Dizziness with hypotension upon standing	3	3
Cognitive Confusion	2	2
Craving sweets sugar	2	2
Paranoia	2	2
Memory problems	2	2
Sleep attacks (daytime)	2	2
Dry mouth (xerostomia)	2	2
Swollen feet	2	2
Eyes water (tearing)	2	2
Visual hallucinations	2	2
Jerky movements (dyskinesia)	2	2
Increased shopping	2	2
Restless feeling in legs	2	2
Elevated blood pressure	2	2
Stomach upset	2	2
Hallucinations	2	2
Obsessions	2	2
Insomnia (less then 2 hours sleep)	2	2
Impulse control disorder	2	2
Headaches all day	2	2
Excessive yawning	2	2
Numbness in feet up to shins	2	2
Vomiting	2	2
Dystonia	2	2
Morning nausea	2	2
bad odor	1	1
Ankle edema	1	1
Jerky movements of arms	1	1
Sinus pain	1	1
Difficulty sleeping	1	1
Agitation with irritability	1	1
Swelling of right foot	1	1
Stiffness in hands	1	1
Frequent nausea	1	1
Generalized itching	1	1
Swelling in fingers	1	1
Early evening sleeping	1	1
Affects memory	1	1
Visual field flashing lights	1	1
Dry heaves	1	1
Makes me emotional or short fused	1	1
Foot dystonia	1	1
hypertensive crisis	1	1
Stiffness in fingers	1	1
Occasional fainting	1	1
total body fatigue in waves with anxiety and flushed feeling	1	1
Muscle twitches in fingers	1	1
Makes me gag until I almost vomit	1	1
Bradydyskensia serious/right esp left ankle/feet swelling	1	1
Constant activity	1	1
Daytime tiredness	1	1
Stopped Working	1	1
Excessive behavior	1	1
Manic behaviors	1	1
Dangerous behavior	1	1
vision streaks	1	1
Unintentional weight loss	1	1
Leg edema	1	1
Stiffness in knees	1	1
Timid	1	1
Swelling in wrists	1	1
Complete inability to sleep (not merely insomnia)	1	1
Constant vomiting	1	1
Drug ineffective	1	1
Sudden onset of sleep after dose	1	1
Makes other meds less effective	1	1
Sinus pressure	1	1
6 Pain Pain26	1	1
Jerky movements of legs	1	1
Edema in hands	1	1
Inattention	1	1
Increased concentration	1	1
Twisting of the mouth or rabbit mouth	1	1
Generalized Anxiety Disorder	1	1
Phantosmia	1	1
Compulsive Gambling	1	1
Tiredness increased	1	1
Depressed mood	1	1
Emotional lability	1	1
Ringing in ears (tinnitus)	1	1
Heartburn	1	1
Weakness in legs	1	1
Startle easily	1	1
Slowness	1	1
Apathy	1	1
Cramps in feet	1	1
Balance problems	1	1
Brain fog	1	1
Pain in fingers	1	1
Diarrhea	1	1
Abdominal bloating	1	1
Hair loss (alopecia)	1	1
Loss of sense of smell (anosmia)	1	1
Peripheral neuritis	1	1
REM Sleep Behavior Disorder	1	1
Lose train of thought	1	1
Pain in knees	1	1
Nerve pain (neuralgia)	1	1
Persistent cough	1	1
Problems concentrating	1	1
Vision Abnormalities (Halos/Floaters/Snow)	1	1
Impulsive behaviors	1	1
Muscle pain	1	1
Heart palpitations	1	1
Cold hands and feet	1	1
Pain in hips	1	1
Auditory hallucinations	1	1
Lightheadedness	1	1
Motion sickness	1	1
Syncope (fainting)	1	1
Fainting	1	1
Irritability	1	1
Joint stiffness	1	1
Hyponatremia	1	1
Throat tightening	1	1
Extreme sedation	1	1
Elevated blood sugar (hyperglycemia)	1	1
Sedation	1	1
Dizziness and feeling faint	1	1
on/off time is like a rollercoaster ride	1	1
Swelling in ankle	1	1
Nausea sometimes	1	1
Low self esteem	1	1
Overeating	1	1
Narcolepsy	1	1
Sleep problems	1	1
face grimace	1	1
Obsessive behavior	1	1
Breathing difficulty with activity	1	1
Personality change	1	1
Increased fatigue	1	1
Edema in feet	1	1
Dizziness (vertigo)	1	1
Localized muscle ache	1	1
Surreal dreams	1	1
felt crooked	1	1
Blood pressure decreased	1	1
Can't recall words or enterrupted throught process	1	1
Drunk feeling	1	1
Tendonitis	1	1
Swelling in hands	1	1
Sinus congestion	1	1
pre occupation of thought	1	1
Dizziness with nausea	1	1

Reported Dosages

Frequently reported dosages based on patients currently taking Ropinirole. See all 65 dosages ►

0.25 mg daily	0.5 mg daily	1 mg daily	2 mg daily	3 mg daily	4 mg daily	6 mg daily	8 mg daily	12 mg daily	16 mg daily
55	53	107	121	48	97	91	87	102	46

Reported Stop Reasons

Why Patients Stopped Taking Ropinirole (multiple reasons could be selected)
Reason	# Patients	Percentage of patients
Side effects too severe	171
Doctor's advice	99
Did not seem to work	86
Other	55
Expense	20
Personal research	14
Not indicated	11
Course of treatment ended	9
Change in health plan coverage	6

See all 342 patients who’ve stopped taking Ropinirole

Reported Duration See details about how long patients take this treatment ▼ Reported Duration Hide details ▲

Currently Taking Ropinirole

A bar graph

0-1 month	1-3 months	3-6 months	6 months-1year	1-2 years	2 years or more
2	8	14	43	69	352

Stopped Taking Ropinirole

A bar graph

0-1 month	1-3 months	3-6 months	6 months-1year	1-2 years	2 years or more
45	55	62	67	64	65

Reported Adherence, Burden & Cost See details from patient evaluations ▼

Adherence

Taking treatment as prescribed

Adherence of Ropinirole

Always	310	80%
Usually	56	15%
Sometimes	12	3%
Never	8	2%

Burden

Difficulty being on treatment

Burden of Ropinirole

Very	27	7%
Somewhat	51	13%
A little	74	19%
Not at all	234	61%

Cost

Paid out of pocket

Cost of Ropinirole

$200+	13	5%
$100-199	11	4%
$50-99	36	14%
$25-49	48	18%
< $25	155	58%

See more information, including instructions, precautions, side effects, and interactions.

Patient Evaluations

See all 386 patient evaluations

Shakin

Sex: M

On

Mouth/throat: none

Arms: mild

Chest: none

Legs: none
Shakin

24 mg daily

since Aug 04, 2010
Efficacy Slight for Parkinson's Disease
Side Effects Moderate
Advice/Tips Well I'll be switched! I took this crap (carba/leva) a couple of years ago with NO positive result. Needless to say I was not very open to the idea that we t... See full evaluation

seasea

Sex: F

Mouth/throat: none

Arms: mild

Chest: none

Legs: mild
seasea

4 mg daily

since Sep 10, 2009
Efficacy Slight for Other
Side Effects Mild
Advice/Tips No impact that I can notice. My hair has started to fall out. I don't know if that is a side effect of this medication. See full evaluation