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meghan&michael

meghan&michael

Male, 44 years
New Windsor, NY

meghan&michael: Sex: M; Data Quality: 2 stars; ALS: < 1 yr; Bi-Pap Feeding tube; Mouth/throat: moderate; Arms: severe; Chest: moderate; Legs: moderate; See profile

Member since: 05/07
Last updated: 12/28/07

Diagnosis Summary
Onset: Arms
First symptom: 01/07
Diagnosis: 04/07
Deceased: 12/30/07

About Me
I've been recently diagnosed with familial ALS. My grandfather, Aunt and then Father all suffered with this disease. I met my wife when she was my Aunt Kathy's nurse. Kathy had been vented for 8 years. We met married and had two children. Then the month she died my father Thomas was diagnosed. He passed away 15 months later and that was eight years ago. Their symptoms had all begun in the legs, Mine in the right arm. It seems to be progressing quite rapidly. We have two children Meghan and Michael ages 10 and 8.

225 Views

ALS Public Registry

ALS Condition

FRS: 7 (latest: 11/29/07)

Progression rate percentile: 5-10th (rapid); 10-25th; 25-75th (average); 75-90th; 90-95th (slow)

FVC: 12% (latest: 11/29/07)

Warning Levels: warning; severe

Weight: 155 lb (latest: 12/28/07)

BMI: obese; overweight; healthy; underweight

Treatments

Prescription Drug

Reasons Taken: treat my ALS; general health; specific symptom; other

Over The Counter Drug

Supplement

Physical Therapy

Equipment

Other

Symptoms

Primary Symptoms

Severity of Symptoms: none; mild; moderate; severe

Secondary Symptoms