PatientsLikeMe : Parkinson's Disease Community

Caregiver	My PWP	About Me
Pd husband
Paper		I'm 57, single, and work full time. My partner was diagnosed in 2001 after my observations of tremor, balance problems and slowness of movement prompted me to urge him to see a doctor. He has been on disability since 2002 and has been holding his own physically, but this year there has been a mental decline that is really scaring me. I cannot quit working but wonder how long it will be before he can't take care of himself, and what will I do then?
blindman		ME: Harvard Medical School, Internal Medicine residency, Ophthalmology residency, Glaucoma fellowship. Multiple national awards for screenwriting. MY WIFE: Early-onset Parkinson's Disease. You can read about her here (NY Times): http://www.nytimes.com/2007/06/05/health/psychology/05sens.html?_r=1&scp=1&sq=Sensory+Processing+Disorder&st=nyt&oref=slogin And here (Time magazine): http://www.time.com/time/magazine/article/0,9171,1689216,00.html
Alchemy09
parkydaughter
zhousek
goldeneagle
klh5539
maoxiong	seasea
mankind
CFonzie
msontz	sontzie66
2kingcharles		I do as much caretaking for my 86 yr old father as I can. Unfortunately I have CFS so that limits me. But I do from time to time move in with him & and I do talk to him on the phone daily. He's not alone much at all.
mr.parade		I am the daughter of my Dad. He has been struggling with Parkinson's for 8 years. He is now in a Skilled Nursing unit with a feeding tube and catheter. He has dementia. He is barely understandable when he tries to talk and when he does, it doesn't make sense. I think he is as comfortable as he can be and in terms of "quality of life" it is as good as could be. Not great but okay. He is able to be off the tube for 4 hours a day and be taken outside to sit in his wheelchair. I am always wondering what is he thinking and what can I do for him. What does he want? Horrible disease.
mmmozelle
Matt122
staygold		My life revolves around my husband who has had Parkingson since 2002. In five years he has rapidly advanced to level four. We live in a small community and there is no support group here so I feel very alone in this. On July 28th of this year we moved into an assistant living apartment, this has helped us both, but there still isn't anyone here to talk to about this terrible disease. So I just heard about this web site on CNN and am looking forward to talking to others in the same situation as I am.
bigguy	dede	I AM THE HUSBAND AND CAREGIVER OF DEDE. I HAD TO TAKE A EARLY RETIREMENT TO TAKE CARE OF DEDE. I LIKE TO GET OUT AND PLAY GOLF. AND ENJOY THE OUTSIDE.
bob-cao
Sunbear

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