PatientsLikeMe : Parkinson's Disease Community

Caregiver	My PWP	About Me
hopefullone
Queenie4444
annabellelee
carolm	poplar	My husband, poplar, was just diagnosed with PD after two open heart surgeries in the last 6 months. We are both 55 and have lived with good health and much activity, both practicing yoga every day up until the surgeries. We are more inclined to natural medicines and life style corrections rather than the meds, but of course will do what ever it takes to improve the situation. I will share what we find helps.
CFonzie
msontz	sontzie66
rlrich		I'm the caregiver for my wife who has "Corticobasal Ganglionic Degeneration", which is a very rare disease that's similar to Parkinson's in many ways. But yet very different at the same time. Only one person in 600,000 has this illness. It can only be definatively diagnosed after death by doing a autopsy of the brain. Useful for the medical community but not much hope for my wife and me.
2kingcharles		I do as much caretaking for my 86 yr old father as I can. Unfortunately I have CFS so that limits me. But I do from time to time move in with him & and I do talk to him on the phone daily. He's not alone much at all.
mr.parade		I am the daughter of my Dad. He has been struggling with Parkinson's for 8 years. He is now in a Skilled Nursing unit with a feeding tube and catheter. He has dementia. He is barely understandable when he tries to talk and when he does, it doesn't make sense. I think he is as comfortable as he can be and in terms of "quality of life" it is as good as could be. Not great but okay. He is able to be off the tube for 4 hours a day and be taken outside to sit in his wheelchair. I am always wondering what is he thinking and what can I do for him. What does he want? Horrible disease.
grapenfrank	wormy72
mmmozelle
Matt122
Cherie
staygold		My life revolves around my husband who has had Parkingson since 2002. In five years he has rapidly advanced to level four. We live in a small community and there is no support group here so I feel very alone in this. On July 28th of this year we moved into an assistant living apartment, this has helped us both, but there still isn't anyone here to talk to about this terrible disease. So I just heard about this web site on CNN and am looking forward to talking to others in the same situation as I am.
mankind
klh5539
bigguy	dede	I AM THE HUSBAND AND CAREGIVER OF DEDE. I HAD TO TAKE A EARLY RETIREMENT TO TAKE CARE OF DEDE. I LIKE TO GET OUT AND PLAY GOLF. AND ENJOY THE OUTSIDE.
bob-cao
Sunbear
threeofnine

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