Caregivers : PatientsLikeMe

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	Username, Name	Title	About Me
kstafne member since Jul 2006 kstafne Data Quality: 0 stars Sex: Female Age: 34y Condition: Quality of Life: Social: Unreported Mental: Unreported Physical: Unreported I am: Very good	kstafne kstafne		I'm a caregiver to my husband Scott and mom to our daughters Eva, 3 1/2, and Miranda, 7 months. I enjoy gardening, wine, photography, and spending time with my family. I used to enjoy beating Scott at Scrabble, tending a huge garden, ballroom dancing, going out for breakfast to read the paper...
missy67 member since Nov 2007 missy67 Data Quality: 0 stars Sex: Female Age: 44y Condition: Quality of Life: Social: Unreported Mental: Unreported Physical: Unreported I am: None	missy67 missy67	My brother has Als,I am not a primary caregiver,I help if they need me	My brother is Dave in WV and he and his wife Deb are my heros They are incredible people and embrace life.Dave makes me feel guilty for ever feeling sad,or depressed,He never complains and they always come up with new ways to overcome their obstacles,I know I don't help enough but if they need ...
MOMINFLORIDA member since Mar 2008 MOMINFLORIDA Data Quality: 0 stars Sex: Female Age: 71y Condition: Quality of Life: Social: Unreported Mental: Unreported Physical: Unreported I am: None	MOMINFLORIDA MOMINFLORIDA		We are the parents of four children, the youngest a son age 38 with als. We moved to central Florida almost 6 yesrs ago before our sons dx. We try to be as supportive as we can to him and his family, but distance doesn't let us do all we would like to do. He is still working light duty and hi...
jessina member since Sep 2009 jessina Data Quality: 0 stars Sex: Male Age: 42y Condition: Quality of Life: Social: Unreported Mental: Unreported Physical: Unreported I am: None	jessina jessina
AuthorBeckyAyers First Symptom: 07/65 Dx: 05/07 AuthorBeckyAyers Data Quality: 3 stars Sex: F Age: 52y Diagnosis: TLE Duration: 46 yrs PRO survey: PRO 3 Quality of Life: Social: Moderate Mental: Severe Physical: Mild Seizures: 3 CP 0 GTC 7 SP	AuthorBeckyAyers AuthorBeckyAyers		I am a 52 year old author with a cavernous angioma of the right temporal lobe, slightly overlapping the parietal lobe. I was diagnosed in 2007, even though I went my whole life having what we thought were low blood sugar fits. I take 2,500mg Keppra every day and still have visual aura's, olfactor...
allandale member since Apr 2008 allandale Data Quality: 0 stars Sex: Male Age: 61y Condition: Quality of Life: Social: Unreported Mental: Unreported Physical: Unreported I am: None	allandale allandale		I am the husband (58) of Corinne (53) we have 6 Children with 5 married and 7 grandkids with one on the way. I still work full time as a building contractor and also serve as primary care giver for my wife - flexiblity in my work schedule allows me to do this. Corinne's possitive attidude and b...
thecyclist First Symptom: 03/88 Dx: 01/09 thecyclist Data Quality: 3 stars Sex: Male Age: 48y Condition: MASS Phenotype 2 additional condition(s) Quality of Life: Social: None Mental: None Physical: None I am: Very good	thecyclist thecyclist
bheywood Admin	bheywood Ben Heywood	Co-Founder, President	I am one of the founders of PatientsLikeMe. We started PatientsLikeMe to help patients learn from our family's experience after my brother Stephen was diagnosed with ALS. We hope you find the site useful - please let us know if you have any suggestions or improvements. Loo...
jamie Admin	jamie James Heywood	Co-Founder, Chairman	I am the Co-Founder with Ben and Jeff and Chairman of PatientsLikeMe. and the Founder and Former CEO of the ALS Therapy Development Institute. Since Stephens
Doctors For America Joel Weddington MD California State Director, Doctors For America	JoelWeddingtonMD Joel Weddington MD	California State Director, Doctors For America	I'm a medical doctor in the San Francisco Bay Area, particpipating in healthcare reform activities. I joined Doctors For America out of the desire to contribute to an organization that provides the strong physician leadership needed to restore health to our nation.
Eva Sweden member since Mar 2010 Eva Sweden Data Quality: 0 stars Sex: Female Age: 49y Condition: Quality of Life: Social: Unreported Mental: Unreported Physical: Unreported I am: None	Eva Sweden Eva Sweden
sitelle First Symptom: 07/78 Dx: 07/78 sitelle Data Quality: 3 stars Sex: Female Age: 68y Condition: Osteopenia 5 additional condition(s) Quality of Life: Social: None Mental: Mild Physical: None I am: Bad	sitelle sitelle		SInce my friend's death, I started caring a litte about my health. Discoverd significant problems, with bone frailty (I have hip prothesis) and curved rachis. With 6 crushed vertebrae, and diverse fractures. I underwent thyroid ablation, soon after Tchernobyl. It was pre-cancerous. ...
Queenie4444 member since Jun 2008 Queenie4444 Data Quality: 0 stars Sex: Female Age: 46y Condition: Quality of Life: Social: Unreported Mental: Unreported Physical: Unreported I am: None	Queenie4444 Queenie4444		My husband is 48 and was diagnosed with PD in September 2007. We have two children ages 5 and 8.
allanfrankel Guest Doctor Member since: 11/11	allanfrankel Allan Frankel
Farmami member since Jun 2006 Farmami Data Quality: 0 stars Sex: Age: Condition: Quality of Life: Social: Unreported Mental: Unreported Physical: Unreported I am: None	Farmami Farmami
david100 First Symptom: 11/06 Dx: 06/07 david100 Sex: M Data Quality: 3 stars MSA: 5 yrs Type: Striatonigral degeneration (MSA-p) Mood: Very bad Cognition: Severe Autonomic: Severe Head: severe Arms: moderate Legs: moderate Tremors: moderate	david100 david100		On Facebook: Add me: Dave Dennis
Coffee member since Feb 2008 Coffee Data Quality: 0 stars Sex: Female Age: Condition: Quality of Life: Social: Unreported Mental: Unreported Physical: Unreported I am: None	Coffee Coffee		I live in Spring, Texas with my husband. He was diagnosed with ALS on November 14, 2007 - the day after our 45th wedding anniversary. He had been having symptoms since January, 2005. His whole attitude about having ALS and life in general is amazing. We have one son, Scott, who lives nearby a...
Camden AHEC member since Nov 2008 Camden AHEC Data Quality: 0 stars Sex: Male Age: 46y Condition: Quality of Life: Social: Unreported Mental: Unreported Physical: Unreported I am: Very good	Camden AHEC Camden AHEC		“ Positive Effect Group” is a weekly support group for people living HIV+ in the Camden NJ or Philadelphia area, who have an positive outlook on life. Meeting the second and last Wednesday 5pm to 7pm for confidential meetings hosted in a safe, and comfortable environment you can make new friends...
bipolarmom5 First Symptom: 01/83 Dx: 12/90 bipolarmom5 Sex: F Data Quality: 1 star Bipolar I Depression: 1 Mania: 0 Emotional: 2 Anxiety: 2 Compulsion: 0 External Stress: Severe Rx Therapy 41 F Function: Moderate Distress: Low	bipolarmom5 bipolarmom5		I am a bipolar mom to 5 kids. I am going through some major changes in my life right now. My husband and I are in the middle of a divorce right now that, at times, is less than friendly. My 4 young children are having a very hard time with this. My soon to be ex does not handle himself as a paren...
Judyb37 member since May 2010 Judyb37 Data Quality: 0 stars Sex: Female Age: 56y Condition: Quality of Life: Social: Unreported Mental: Unreported Physical: Unreported I am: None	Judyb37 Judyb37		It is almost 1 year since I lost Fred (FMB). It doesn't get any easier as time passes. It just makes me miss him so much more. We have a granddaughter now, she was born in Nov. 2010. He never met her but she has so many of his qualities. If there is a god, please find a cure and stop this terri...