Rare Disease Day logo from Global Genes Project. Get involved here!
http://globalgenes.org/world-rare-disease-day/

New hope logo for Global Genes Project.

Our new solidarity Hope bracelets for people fighting rare and genetic diseases.

Support the Genes Ribbon for Rare and Genetic Disease Awareness.

Abigail Grace is a precious four year old girl whose story touches the hearts of people near and far. After being sick during June 2011, she had an MRI and was diagnosed with Metastic Pineoblastoma. This is a rare malignant brain cancer which has already spread into her spine.

Despite this extremely difficult cancer diagnosis and painful treatments, sweet little Abby and her family continue to embrace hope.

Thanks to Sweet Nectar Society for providing Abby's inspiring and touching picture for our 2012 Tribute to Champions of Hope Gala.

Brothers James and John Valvano are in a fight for their lives against Huntington's disease, a progressive neurodegenerative disease passed down through families in which nerve cells in the brain simply waste away. We featured James and John's at our 2012 Tribute to Champions of Hope Gala for all the work they do for HD and WeHaveAFace.org.

Cali and Ryann have an undiagnosed rare neurological disease. The National Institutes of Health has pledged $145 million in funding over the next seven years for the Undiagnosed Diseases Program (UDP) to provide a new network of medical research centers focused on the discovery, diagnosis, and care of undiagnosed patients.

http://globalgenes.org/national-institutes-of-health-marks-145-million-to-help-patients-with-undiagnosed-rare-diseases/

Sadly, this is a true statistic that we all must try and change. Millions of children pass away each year from rare and genetic diseases and no one seems to hear about it. Collectively, we have to do something and take action. 95% of all rare diseases do not have a single FDA approved drug treatment or cure - how scary is this fact!? Lack of treatments impacts all of us.

Looking for Rare Disease Facts and Statistics -- you can find them here.

Learn how to become a supporter of Global Genes Project. http://globalgenes.org/supporting-organizations/

Learn about the 7000 Bracelets for Hope rare and genetic disease awareness campaign.
http://globalgenes.org/7000-bracelets-for-hope/

Interested in meeting other rare disease patients in your area. Sign up for Rare Meetups - http://globalgenes.org/rare-meetups/

In conjunction with the first annual RARE Tribute to Champions of Hope Gala, Global Genes | R.A.R.E will hold a Patient Advocacy Summit on September 28, 2012, from 9 a.m. to 3 p.m. at the Balboa Bay Club & Resort. More info. here.

http://globalgenes.org/2012-patient-advocacy-summit/

Global Genes Announces Tribute to Champions of Hope™ Gala to Honor Rare and Genetic Disease Pioneers, Innovators and Advocates

http://globalgenes.org/global-genes-and-r-a-r-e-project-announce-tribute-to-champions-of-hope-gala-to-honor-rare-and-genetic-disease-pioneers-innovators-and-advocates/

Rare List -- Is Your Rare Disease On The List of 7000 Rare Diseases?
http://globalgenes.org/rarelist/