PatientsLikeMe ™

MS
Join Now (It's free!)

Already a member? Log in

Share your real-world treatment experience
with patients just like you.
Select a community
MS
Find out more about the PatientsLikeMe
MS Community

See More Treatments

See all treatments in the PatientsLikeMe system shared by patients just like you.


Brand Names: Carbatrol, Equetro, Novo-Carbamazepine, Tegral, Tegretol, Tegretol CR, Tegretol XR

What is Carbamazepine? Carbamazepine is an anticonvulsant and mood stabilizing drug, used primarily in the treatment of epilepsy and bipolar disorder. It is also used to treat schizophrenia and trigeminal neuralgia. Read more...Click to read more below

See more information, including instructions, precautions, side effects, and interactions.


Dosages

Based on the patients currently taking Carbamazepine.

Top 10 (Show all)

All (Show Top 10)

  0 mg day 0 mg none 1 mg day 40 mg day 100 mg day 200 mg day 300 mg day 400 mg day 400 day 600 mg day 800 mg day 1200 mg day 1600 mg day
  5 Number of Patients: 5 1 Number of Patients: 1 1 Number of Patients: 1 1 Number of Patients: 1 6 Number of Patients: 6 11 Number of Patients: 11 6 Number of Patients: 6 18 Number of Patients: 18 1 Number of Patients: 1 9 Number of Patients: 9 5 Number of Patients: 5 1 Number of Patients: 1 1 Number of Patients: 1  

Duration

How long current patients have been taking Carbamazepine or how long patients were taking Carbamazepine before stopping.

Currently taking Carbamazepine

0-1 month 1-3 months 3-6 months 6 months-1year 1-2 years 2 years or more
5
4
10
10
6
13

Stopped taking Carbamazepine

0-1 month 1-3 months 3-6 months 6 months-1year 1-2 years 2 years or more
7
4
3
0
6
7
Why Patients Stopped Taking Carbamazepine (multiple reasons could be selected)
Reason # Patients Percentage of patients
Side effects too severe 12 44% Side effects too severe: 44%
Doctor's advice 5 19% Doctor's advice: 19%
Did not seem to work 3 11% Did not seem to work: 11%
Other 3 11% Other: 11%
Course of treatment ended 3 11% Course of treatment ended: 11%
Not indicated 2 7% Not indicated: 7%
Personal research 1 4% Personal research: 4%
Expense 1 4% Expense: 4%

Patient Reported Evaluations

Results from 4 patient evaluations. See the overall results and all individual evaluations.

Efficacy (Effect based on reason taken)

Major 100% 1

trigeminal neuralgia

Side-effects (as an overall problem)

Severe 0% 0
Moderate 75% 3
Mild 0% 0
None 25% 1

Top reported side-effects include: Mood swings, Increased Hunger, Dizziness

Summary results are based on 4 individual responses. For more information, see overall results for Adherence, Burden and Cost.

Individual Patient Reported Evaluations (2 of 4)

  • JesswithMS
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
  • JesswithMS
  • by JesswithMS
    Apr 30, 2003
  • EfficacyModerate
  • Side-effectsModerate
  • Neuropathy pain
Advice/Tips
Take medication as prescribed. If you need to stop medication make sure you wean yourself off of the drug according to your doctor due to causing very severe side effects including seizures.

  • katonah
    Sensation: Moderate
    Overall: None
    Cognition: none
    Vision: none
    Speech: none
    Swallowing: none
    Upper limb: moderate
    Walking: mild
  • katonah
  • by katonah
    Oct 29, 2008
  • EfficacyMajor
  • Side-effectsModerate
  • Stiffness/spasticity
Advice/Tips
Has worked well for me, especially for most of my nerve pain.

See all evaluation results for Carbamazepine



Back to top