PatientsLikeMe ™

MS
Skip over navigation
Join Now (It's free!)

Already a member? Log in

See More Treatments

See all treatments in the PatientsLikeMe system shared by patients just like you.


Brand Names: Copaxone
Generic Name: Glatiramer

What is Glatiramer? Glatiramer is a combination of four amino acids (proteins) that affect the immune system. It is an antiinflamatory used to prevent relapse of multiple sclerosis (MS). This medication will not cure MS, but it can make relapses occur less often. Read more...Click to read more below

See more information, including instructions, precautions, side effects, and interactions.


Reasons Taken

1457 patients in the community are taking or have taken Glatiramer.

Reason # Patients Percentage of patients
Slow my MS progress 1226 87%
Other 81 5%
Stiffness/spasticity 23 1%
General health 12 <1%
Fatigue 11 <1%
disease-related symptoms 9 <1%
Don't know 8 <1%
Bladder problems 7 <1%
Pain 5 <1%
Brain fog 3 <1%
Depression 3 <1%
Anxiety 2 <1%
Mood swings 2 <1%
Numbness 1 <1%
Loss of coordination/balance 1 <1%
Numbness, tingling, pins & needles (paresthesia) 1 <1%
numbness in left hand 1 <1%
Cognition 1 <1%
Mobility 1 <1%
Blurry vision 1 <1%

Dosages

Based on the patients currently taking Glatiramer.

Top 10 (Show all)

All (Show Top 10)

  0 mg day 0 day 0 mg none 0 mg week 0.2 mg day 1 g day 1 mg day 1 day 2 mg day 20 mg week 5 mg day 10 mg day 20 mg day 13 mg day 15 mg day 20 mg day 20 day 22 mg day 25 mg day 30 mg day 40 mg day 44 mg day 50 mg day 60 mg day 80 mg day 81 mg day 100 mg day 120 mg day 200 mg day 250 mg day 300 mg day 400 mg day 500 mg day 1200 mg day
  291 Number of Patients: 291 2 Number of Patients: 2 1 Number of Patients: 1 1 Number of Patients: 1 1 Number of Patients: 1 1 Number of Patients: 1 48 Number of Patients: 48 7 Number of Patients: 7 2 Number of Patients: 2 2 Number of Patients: 2 2 Number of Patients: 2 15 Number of Patients: 15 1 Number of Patients: 1 1 Number of Patients: 1 1 Number of Patients: 1 637 Number of Patients: 637 2 Number of Patients: 2 1 Number of Patients: 1 5 Number of Patients: 5 7 Number of Patients: 7 7 Number of Patients: 7 2 Number of Patients: 2 3 Number of Patients: 3 6 Number of Patients: 6 1 Number of Patients: 1 1 Number of Patients: 1 3 Number of Patients: 3 1 Number of Patients: 1 11 Number of Patients: 11 1 Number of Patients: 1 1 Number of Patients: 1 1 Number of Patients: 1 1 Number of Patients: 1 1 Number of Patients: 1  

Duration

How long current patients have been taking Glatiramer or how long patients were taking Glatiramer before stopping.

Currently taking Glatiramer

0-1 month 1-3 months 3-6 months 6 months-1year 1-2 years 2 years or more
15
65
114
144
152
366

Stopped taking Glatiramer

0-1 month 1-3 months 3-6 months 6 months-1year 1-2 years 2 years or more
16
31
51
58
64
94
Why Patients Stopped Taking Glatiramer (multiple reasons could be selected)
Reason # Patients Percentage of patients
Did not seem to work 131 41% Did not seem to work: 41%
Side effects too severe 124 39% Side effects too severe: 39%
Doctor's advice 80 25% Doctor's advice: 25%
Other 58 18% Other: 18%
Expense 18 6% Expense: 6%
Personal research 12 4% Personal research: 4%
Not indicated 6 2% Not indicated: 2%
Course of treatment ended 1 0% Course of treatment ended: 0%

Patient Reported Evaluations

Results from 56 patient evaluations. See the overall results and all individual evaluations.

Efficacy (Effect based on reason taken)

Major 23% 12
Moderate 17% 9
Slight 8% 4
None 10% 5
Can't tell 42% 22

Slow my MS progress

Side-effects (as an overall problem)

Severe 7% 4
Moderate 7% 4
Mild 54% 30
None 32% 18

Top reported side-effects include: injection site reaction, redness, lumps

Summary results are based on 56 individual responses. For more information, see overall results for Adherence, Burden and Cost.

Individual Patient Reported Evaluations (2 of 56)

  • BrainStain4
    Flare-up: moderate
    Sensation: moderate
    Overall: none
    Cognition: mild
    Vision: moderate
    Speech: none
    Swallowing: none
    Upper limb: none
    Walking: none
    See profile
  • BrainStain4
  • by BrainStain4
    Aug 18, 2008
  • EfficacyCan't tell
  • Side-effectsMild
  • Slow my MS progress
Advice/Tips
Doing the injections manually (rather than using the autoject) results in less site reactions. Read the included information, and make sure you are aware of the symptoms of the "reaction" that some experience immediately after injecting. It can be really scary when it happens if you don't know what it is. It happened to me once, after being on Copaxone for over 1.5 years.

  • JesswithMS
    Sensation: severe
    Overall: moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    See profile
  • JesswithMS
  • by JesswithMS
    Feb 10, 2005
  • EfficacyModerate
  • Side-effectsMild
  • Slow my MS progress
Advice/Tips
Ice down your injection site to help with the redness. I also found that self injecting prevented the welts I would get from the autoinjector.

See all evaluation results for Glatiramer



Back to top