PatientsLikeMe : Minocycline Treatment Report

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See all treatments in the PatientsLikeMe system shared by patients just like you.

Taking Minocycline
17 Patients currently take Minocycline
6 Patients stopped taking Minocycline
jade247 Sensation: Moderate Overall: Moderate Cognition: moderate Vision: moderate Speech: mild Swallowing: mild Upper limb: moderate Walking: moderate See profile jade247 Akamin, 100mg daily since Jan 01, 1999
Tnkrbell Sensation: None Overall: Mild Cognition: moderate Vision: moderate Speech: moderate Swallowing: mild Upper limb: none Walking: none See profile Tnkrbell 200mg daily since Mar 07, 2008
Walk Tall Sensation: Severe Overall: Severe Cognition: severe Vision: moderate Speech: moderate Swallowing: severe Upper limb: severe Walking: severe See profile Walk Tall 50mg daily since Apr 18, 2008

What is Minocycline? Minocycline is a second-generation, long-acting tetracycline. It is indicated in the treatment of a variety of bacterial infections, including brain and meningeal infections; it is ten times better able to enter the brain than other tetracycline antibiotics. A European trial in ALS starts in 2007. Read more...

See more information, including instructions, precautions, side effects, and interactions.

Jump to:: Reasons Taken; Dosages; Duration; Patient Evaluations

Reasons Taken

23 patients in the community are taking or have taken Minocycline.

Reason	# Patients	Percentage of patients
Slow my MS progress	15	65%
Other	3	13%
General health	2	8%
Acne	1	4%

Dosages

Based on the patients currently taking Minocycline.

0 mg day	50 mg day	100 mg day	200 mg day	500 mg day
3	1	4	8	1

Duration

How long current patients have been taking Minocycline or how long patients were taking Minocycline before stopping.

Currently taking Minocycline

0-1 month	1-3 months	3-6 months	6 months-1year	1-2 years	2 years or more
0	0	4	0	2	4

Stopped taking Minocycline

0-1 month	1-3 months	3-6 months	6 months-1year	1-2 years	2 years or more
1	1	1	1	0	3

Why Patients Stopped Taking Minocycline (multiple reasons could be selected)
Reason	# Patients	Percentage of patients
Doctor's advice	3	50%
Did not seem to work	2	33%
Personal research	1	17%
Side effects too severe	1	17%
Not indicated	1	17%

Patient Reported Evaluations

Results from 2 patient evaluations. See the overall results and all individual evaluations.

Efficacy (Effect based on reason taken)

Major	100%	2

Acne

Side-effects (as an overall problem)

Severe	0%	0
Moderate	0%	0
Mild	50%	1
None	50%	1

Top reported side-effects include: Nausea

Summary results are based on 2 individual responses. For more information, see overall results for Adherence, Burden and Cost.

Individual Patient Reported Evaluations (1 of 2)

HopeLives

Sensation: None

Overall: Mild

Cognition: mild

Vision: moderate

Speech: none

Swallowing: none

Upper limb: moderate

Walking: moderate

See profile
by HopeLives
Jul 01, 2008