PatientsLikeMe : Minocycline Treatment Report

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Patients

Taking Minocycline
17 Patients currently take Minocycline
7 Patients stopped taking Minocycline
Cactus59 Sex: M Sensation: Moderate Overall: Mild Cognition: none Vision: none Speech: none Swallowing: none Upper limb: moderate Walking: severe See profile Cactus59 200mg daily since Jan 29, 2003
jade247 Sex: F Sensation: Moderate Overall: Moderate Cognition: moderate Vision: moderate Speech: mild Swallowing: mild Upper limb: moderate Walking: moderate See profile jade247 Akamin, 100mg daily since Jan 01, 1999
Walk Tall Sex: F Sensation: Severe Overall: Severe Cognition: severe Vision: moderate Speech: moderate Swallowing: severe Upper limb: severe Walking: severe See profile Walk Tall 50mg daily since Apr 18, 2008

Brand Names: Akamin, Minoclin
Generic Name: Minocycline

What is Minocycline? Minocycline is a second-generation, long-acting tetracycline. It is indicated in the treatment of a variety of bacterial infections, including brain and meningeal infections; it is ten times better able to enter the brain than other tetracycline antibiotics. A European trial in ALS starts in 2007. Read more...

See more information, including instructions, precautions, side effects, and interactions.

Jump to:: Reasons Taken; Dosages; Duration; Patient Evaluations

Reasons Taken

24 patients in the community are taking or have taken Minocycline.

Reason	# Patients	Percentage of patients
Slow my MS progress	15	62%
Other	3	12%
General health	2	8%
Acne	1	4%

Dosages

Based on the patients currently taking Minocycline.

0 mg Daily	50 mg Daily	100 mg Daily	200 mg Daily	500 mg Daily
3	1	4	8	1

Duration

How long current patients have been taking Minocycline or how long patients were taking Minocycline before stopping.

Currently taking Minocycline

0-1 month	1-3 months	3-6 months	6 months-1year	1-2 years	2 years or more
0	0	3	1	2	4

Stopped taking Minocycline

0-1 month	1-3 months	3-6 months	6 months-1year	1-2 years	2 years or more
2	1	1	1	0	3

Why Patients Stopped Taking Minocycline (multiple reasons could be selected)
Reason	# Patients	Percentage of patients
Doctor's advice	3	43%
Did not seem to work	2	29%
Side effects too severe	2	29%
Personal research	1	14%
Not indicated	1	14%

Patient Reported Evaluations

Results from 2 patient evaluations. See the overall results and all individual evaluations.

Efficacy (Effect based on reason taken)

Major	100%	2

Acne

Side-effects (as an overall problem)

Severe	0%	0
Moderate	0%	0
Mild	50%	1
None	50%	1

Top reported side-effects include: Nausea

Summary results are based on 2 individual responses. For more information, see overall results for Adherence, Burden and Cost.

Individual Patient Reported Evaluations (1 of 2)

HopeLives

Sex: F

Flare-up: Moderate

Sensation: None

Overall: Mild

Cognition: none

Vision: moderate

Speech: none

Swallowing: none

Upper limb: mild

Walking: moderate

See profile
by HopeLives
Jul 01, 2008