PatientsLikeMe : Interferon beta-1a SubQ injection Treatment Report

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Interferon beta-1a SubQ injection Treatment Report

Most Popular Brands: Rebif

See patients taking Interferon beta-1a SubQ injection

What is Interferon beta-1a SubQ injection?

Interferon beta-1a is an immunomodulator used to prevent episodes of symptoms and slow the development of disability in patients with relapsing-remitting multiple sclerosis. It comes as a solution to inject subcutaneously (under the skin) three times a week, ideally the same 3 days each week.

Reasons taken & Efficacy

Reasons and Efficacy
Reasons taken	# of patients	# of patients evaluated by
Slow my MS progress	1274	214
Multiple Sclerosis (MS)	75	31
Other	47	6
Stiffness/Spasticity	17	4
General health	15	7
Fatigue	14	1
disease-related symptoms	10	0
Mobility	5	1
Don't know	5	0
Balance problems	4	2
Support another treatment	2	0
Vision	2	0
Pain	2	0
Weakness/slowness (asthenia)	1	0
Treat my MSA	1	0
walking problems	1	0
Depression	1	0
Cognition	1	0
Emotional lability	1	0
It's has stopped working, just like Betarseron	1	0
Sensation	1	0
Anxiety	1	0
no longer take it	1	0
MS	1	0
Have been given a 1 year supply free	1	0
Excessive daytime sleepiness (somnolence)	1	0
vision	1	0

See all 27 reasons taken ▼

See all 1140 patients currently taking Interferon beta-1a SubQ injection

Mouse over the table for more information

Side Effects

Side effects as an overall problem

Severe	41	16%
Moderate	94	36%
Mild	98	38%
None	26	10%

Most commonly reported side effects

Injection site redness	154	59%
Muscle ache, whole body	142	55%
Headaches	104	40%
Chills/fever	103	40%
Injection site pain	74	29%
Itchy shot site	44	17%
Injection site burning	41	16%
muscle aches, localized	34	13%
Migraine	33	13%
Fatigue	16	6%
red blotches	14	5%
tingling,hair loss,fatigue	14	5%
Depression	3	1%
Nausea	2	1%
elevated liver enzymes	2	1%
Injection site bruising	2	1%
Bruising	2	1%
High blood pressure (Hypertension)	2	1%
Liver damage	1	0%
Liver Levels Elevated	1	0%
Mouth sores/ulcers	1	0%
severe bruising	1	0%
Injection site knots	1	0%
severe bruising LOW PLATELET LEVELS	1	0%
large unexplained bruises all over legs	1	0%
Abscess	1	0%
body rejected	1	0%
Fatigue and sleepiness	1	0%
couldn't walk for 6-8 hour afterwards	1	0%
joint pain	1	0%
Optic neuritis (inflammation, optic nerve)	1	0%
loss of enthusiam	1	0%
Injection site numbness	1	0%
dry mouth	1	0%
Restless Body Syndrome	1	0%
hives/swelling of lips and tongue	1	0%
Suicidal	1	0%
Flu-like symptoms	1	0%
tremors, body	1	0%
Hip pain	1	0%
Dizziness	1	0%
Lower back pain	1	0%
Stomach cramps	1	0%
Breathing difficulty	1	0%
feeling out of it	1	0%
Congestion/sneezing	1	0%
Excessive Thirst	1	0%
Stiff neck	1	0%
Liver impairment (chronic)	1	0%
Injection site swelling	1	0%
hair loss	1	0%
weakness	1	0%
Insomnia	1	0%
joint aches	1	0%
Diarrhea chronic	1	0%
still ha ve bruise one year later	1	0%
Burning legs	1	0%

Mild
Moderate
Severe

See all 57 reported side effects ▼

Dosages

Top 10 dosages based on patients currently taking Interferon beta-1a SubQ injection. See all 142 dosages ►

0.44 mg as needed	132mcg weekly	22 mcg/0.5 mL as needed	22mcg/0.5mL as needed	3 44mcg/0.5mL as needed	3 times a week	44 mcg/0.5 mL all the time (24/7)	44 mcg/0.5 mL as needed	44mcg/0.5mL as needed	44 mcg all the time (24/7)	44mcg as needed	44 mg all the time (24/7)	44mg as needed	- as needed	as needed	daily	monthly	weekly	0.14 mcg	0.44 mg weekly	0.5 mcg weekly	0.5 mg weekly	0.22 mg	0.25 mcg	0.25 mg	1 g weekly	1 weekly	0.3 mcg	0.3 mg	1.1 weekly	0.44 mcg	0.5 mcg	0.44	0.44 mcg	0.44 mg	0.5 mcg	0.3 mcg daily	0.3 mg daily	0.8 mcg	0.75 mg	1 mcg	3 mcg weekly	3 mg weekly	3 weekly	1	1 mcg	1 mg	4.4 mcg weekly	30 mcg/0.5 mL monthly	1 mL daily	8.8 mcg weekly	3 mcg	3 mcg	3 mg	4.4 mcg	15 mcg weekly	20 mg weekly	3 mg daily	22 mcg/0.5 mL weekly	22 mcg weekly	22 mg weekly	26.4 mcg weekly	10 mcg	30 mcg/0.5 mL weekly	30 mcg weekly	30 mg weekly	8.8 mg	33 mg weekly	10	12 mcg	40 mcg weekly	40.5 mcg weekly	44 mcg/0.5 mL weekly	44 mcg weekly	44 mg weekly	44 weekly	60 mg weekly	8.8 mcg daily	8.8 mg daily	22 mcg	22 mcg/0.5 mL	22 mcg/0.5 mL 3 times a week	3 x 22 mcg/0.5 mL weekly	66 mcg weekly	66 mg weekly	10 mg daily	22	22 mcg	22 mg	25 mg	2 x 44 mcg/0.5 mL weekly	88 mcg weekly	30 mcg/0.5 mL 3 times a week	33 mcg	99 mcg weekly	30 mcg	112 mcg weekly	40 mcg	120 mg weekly	12 x 44 mcg/0.5 mL monthly	126 mcg weekly	44 mcg	44 mcg/0.5 mL 3 times a week	132 mcg weekly	132 mg weekly	3 x 44 mcg/0.5 mL weekly	40	41 mcg	43 mg	152 mg weekly	22 mcg/0.5 mL daily	22 mcg daily	44	44 g	44 mcg	44 mg	4 x 44 mcg/0.5 mL weekly	30 mcg/0.5 mL daily	30 mcg daily	6 x 44 mcg/0.5 mL weekly	100 mcg	300 weekly	44 mcg/0.5 mL daily	44 mcg/0.5 mL one time	44 mcg daily	132 mcg	138 mcg	125	132 mcg	144 mg	100 mcg daily	200 mcg	200 mg	132 mcg daily	3 x 44 mcg/0.5 mL daily	321 mcg	300 mg	200 g daily	250 mcg daily	500 mcg	300 other daily	44 mcg
1	1	1	3	1	30	1	4	11	1	3	1	1	1	4	15	1	24	1	1	1	1	1	1	2	1	2	2	8	1	2	1	2	1	3	1	1	1	1	1	1	2	3	2	2	3	2	1	1	1	2	1	1	2	1	1	1	1	7	3	3	1	1	2	2	1	1	1	1	1	1	1	63	35	16	1	1	1	1	8	1	15	30	4	2	1	2	2	5	1	1	1	2	1	1	1	1	1	1	3	1	87	55	34	17	184	1	1	1	1	13	2	19	1	36	77	1	2	6	1	1	1	86	1	17	1	1	1	1	1	1	3	1	1	3	1	1	1	1	1	1	1

Stop Reasons

Why Patients Stopped Taking Interferon beta-1a SubQ injection (multiple reasons could be selected)
Reason	# Patients	Percentage of patients
Side effects too severe	274	49%
Did not seem to work	176	32%
Doctor's advice	129	23%
Other	91	16%
Personal research	26	5%
Expense	21	4%
Not indicated	14	3%
Course of treatment ended	10	2%

See all 541 patients who’ve stopped taking Interferon beta-1a SubQ injection

Duration See details about how long patients take this treatment ▼

Currently Taking Interferon beta-1a SubQ injection

0-1 month	1-3 months	3-6 months	6 months-1year	1-2 years	2 years or more
1	21	46	91	114	206

Stopped Taking Interferon beta-1a SubQ injection

0-1 month	1-3 months	3-6 months	6 months-1year	1-2 years	2 years or more
24	62	82	108	90	172

Adherence, Burden & Cost See details from patient evaluations ▼

Adherence

Taking treatment as prescribed

Always	210	81%
Usually	41	16%
Sometimes	5	2%
Never	3	1%

Burden

Difficulty being on treatment

Very	28	11%
Somewhat	75	29%
A little	99	38%
Not at all	57	22%

Cost

Paid out of pocket

$200+	21	8%
$100-199	10	4%
$50-99	46	18%
$25-49	50	19%
< $25	66	25%

See more information, including instructions, precautions, side effects, and interactions.

Patient Evaluations

See all 259 patient evaluations

A Prayer a day

Sex: F

Sensation: Moderate

Overall: Moderate

Cognition: severe

Vision: moderate

Speech: moderate

Swallowing: mild

Upper limb: moderate

Walking: moderate

See profile
A Prayer a day

3 x 44 mcg/0.5 mL weekly

since Jun 22, 2009
Efficacy Moderate for Slow my MS progress
Side Effects None
Advice/Tips Do what I do. Take Motrin and your Rebif shot just before bedtime and you will sleep right through it. I guess I do take sleep meds. See full evaluation

anne ball

Sex: F

Sensation: Moderate

Overall: Moderate

Cognition: moderate

Vision: moderate

Speech: moderate

Swallowing: moderate

Upper limb: moderate

Walking: moderate

See profile
anne ball

22 mcg/0.5 mL daily

since May 23, 2009
Efficacy Can't tell for Slow my MS progress
Side Effects Moderate
Advice/Tips massage cold pack around injection site prior & after injection See full evaluation

SAR1965

Sex: F

Sensation: Mild

Overall: Mild

Cognition: moderate

Vision: mild

Speech: mild

Swallowing: moderate

Upper limb: moderate

Walking: moderate

See profile
SAR1965

every other day

since Aug 29, 2008
Efficacy Can't tell for Slow my MS progress
Side Effects Moderate
See full evaluation

See all 259 patient evaluations

Forum

See 156 topics tagged with Rebif

There are 5833 posts in our forum about Interferon beta-1a SubQ injection. Join now and see what people are saying.

Report created on November 20, 2009.

0.44 mg as needed	132mcg weekly	22 mcg/0.5 mL as needed	22mcg/0.5mL as needed	3 44mcg/0.5mL as needed	3 times a week	44 mcg/0.5 mL all the time (24/7)	44 mcg/0.5 mL as needed	44mcg/0.5mL as needed	44 mcg all the time (24/7)	44mcg as needed	44 mg all the time (24/7)	44mg as needed	- as needed	as needed	daily	monthly	weekly	0.14 mcg	0.44 mg weekly	0.5 mcg weekly	0.5 mg weekly	0.22 mg	0.25 mcg	0.25 mg	1 g weekly	1 weekly	0.3 mcg	0.3 mg	1.1 weekly	0.44 mcg	0.5 mcg	0.44	0.44 mcg	0.44 mg	0.5 mcg	0.3 mcg daily	0.3 mg daily	0.8 mcg	0.75 mg	1 mcg	3 mcg weekly	3 mg weekly	3 weekly	1	1 mcg	1 mg	4.4 mcg weekly	30 mcg/0.5 mL monthly	1 mL daily	8.8 mcg weekly	3 mcg	3 mcg	3 mg	4.4 mcg	15 mcg weekly	20 mg weekly	3 mg daily	22 mcg/0.5 mL weekly	22 mcg weekly	22 mg weekly	26.4 mcg weekly	10 mcg	30 mcg/0.5 mL weekly	30 mcg weekly	30 mg weekly	8.8 mg	33 mg weekly	10	12 mcg	40 mcg weekly	40.5 mcg weekly	44 mcg/0.5 mL weekly	44 mcg weekly	44 mg weekly	44 weekly	60 mg weekly	8.8 mcg daily	8.8 mg daily	22 mcg	22 mcg/0.5 mL	22 mcg/0.5 mL 3 times a week	3 x 22 mcg/0.5 mL weekly	66 mcg weekly	66 mg weekly	10 mg daily	22	22 mcg	22 mg	25 mg	2 x 44 mcg/0.5 mL weekly	88 mcg weekly	30 mcg/0.5 mL 3 times a week	33 mcg	99 mcg weekly	30 mcg	112 mcg weekly	40 mcg	120 mg weekly	12 x 44 mcg/0.5 mL monthly	126 mcg weekly	44 mcg	44 mcg/0.5 mL 3 times a week	132 mcg weekly	132 mg weekly	3 x 44 mcg/0.5 mL weekly	40	41 mcg	43 mg	152 mg weekly	22 mcg/0.5 mL daily	22 mcg daily	44	44 g	44 mcg	44 mg	4 x 44 mcg/0.5 mL weekly	30 mcg/0.5 mL daily	30 mcg daily	6 x 44 mcg/0.5 mL weekly	100 mcg	300 weekly	44 mcg/0.5 mL daily	44 mcg/0.5 mL one time	44 mcg daily	132 mcg	138 mcg	125	132 mcg	144 mg	100 mcg daily	200 mcg	200 mg	132 mcg daily	3 x 44 mcg/0.5 mL daily	321 mcg	300 mg	200 g daily	250 mcg daily	500 mcg	300 other daily	44 mcg
1	1	1	3	1	30	1	4	11	1	3	1	1	1	4	15	1	24	1	1	1	1	1	1	2	1	2	2	8	1	2	1	2	1	3	1	1	1	1	1	1	2	3	2	2	3	2	1	1	1	2	1	1	2	1	1	1	1	7	3	3	1	1	2	2	1	1	1	1	1	1	1	63	35	16	1	1	1	1	8	1	15	30	4	2	1	2	2	5	1	1	1	2	1	1	1	1	1	1	3	1	87	55	34	17	184	1	1	1	1	13	2	19	1	36	77	1	2	6	1	1	1	86	1	17	1	1	1	1	1	1	3	1	1	3	1	1	1	1	1	1	1

0.44 mg as needed	132mcg weekly	22 mcg/0.5 mL as needed	22mcg/0.5mL as needed	3 44mcg/0.5mL as needed	3 times a week	44 mcg/0.5 mL all the time (24/7)	44 mcg/0.5 mL as needed	44mcg/0.5mL as needed	44 mcg all the time (24/7)	44mcg as needed	44 mg all the time (24/7)	44mg as needed	- as needed	as needed	daily	monthly	weekly	0.14 mcg	0.44 mg weekly	0.5 mcg weekly	0.5 mg weekly	0.22 mg	0.25 mcg	0.25 mg	1 g weekly	1 weekly	0.3 mcg	0.3 mg	1.1 weekly	0.44 mcg	0.5 mcg	0.44	0.44 mcg	0.44 mg	0.5 mcg	0.3 mcg daily	0.3 mg daily	0.8 mcg	0.75 mg	1 mcg	3 mcg weekly	3 mg weekly	3 weekly	1	1 mcg	1 mg	4.4 mcg weekly	30 mcg/0.5 mL monthly	1 mL daily	8.8 mcg weekly	3 mcg	3 mcg	3 mg	4.4 mcg	15 mcg weekly	20 mg weekly	3 mg daily	22 mcg/0.5 mL weekly	22 mcg weekly	22 mg weekly	26.4 mcg weekly	10 mcg	30 mcg/0.5 mL weekly	30 mcg weekly	30 mg weekly	8.8 mg	33 mg weekly	10	12 mcg	40 mcg weekly	40.5 mcg weekly	44 mcg/0.5 mL weekly	44 mcg weekly	44 mg weekly	44 weekly	60 mg weekly	8.8 mcg daily	8.8 mg daily	22 mcg	22 mcg/0.5 mL	22 mcg/0.5 mL 3 times a week	3 x 22 mcg/0.5 mL weekly	66 mcg weekly	66 mg weekly	10 mg daily	22	22 mcg	22 mg	25 mg	2 x 44 mcg/0.5 mL weekly	88 mcg weekly	30 mcg/0.5 mL 3 times a week	33 mcg	99 mcg weekly	30 mcg	112 mcg weekly	40 mcg	120 mg weekly	12 x 44 mcg/0.5 mL monthly	126 mcg weekly	44 mcg	44 mcg/0.5 mL 3 times a week	132 mcg weekly	132 mg weekly	3 x 44 mcg/0.5 mL weekly	40	41 mcg	43 mg	152 mg weekly	22 mcg/0.5 mL daily	22 mcg daily	44	44 g	44 mcg	44 mg	4 x 44 mcg/0.5 mL weekly	30 mcg/0.5 mL daily	30 mcg daily	6 x 44 mcg/0.5 mL weekly	100 mcg	300 weekly	44 mcg/0.5 mL daily	44 mcg/0.5 mL one time	44 mcg daily	132 mcg	138 mcg	125	132 mcg	144 mg	100 mcg daily	200 mcg	200 mg	132 mcg daily	3 x 44 mcg/0.5 mL daily	321 mcg	300 mg	200 g daily	250 mcg daily	500 mcg	300 other daily	44 mcg
1	1	1	3	1	30	1	4	11	1	3	1	1	1	4	15	1	24	1	1	1	1	1	1	2	1	2	2	8	1	2	1	2	1	3	1	1	1	1	1	1	2	3	2	2	3	2	1	1	1	2	1	1	2	1	1	1	1	7	3	3	1	1	2	2	1	1	1	1	1	1	1	63	35	16	1	1	1	1	8	1	15	30	4	2	1	2	2	5	1	1	1	2	1	1	1	1	1	1	3	1	87	55	34	17	184	1	1	1	1	13	2	19	1	36	77	1	2	6	1	1	1	86	1	17	1	1	1	1	1	1	3	1	1	3	1	1	1	1	1	1	1

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