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Topiramate Treatment Report
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See all treatments in the PatientsLikeMe system shared by patients just like you.
Brand Names:
Topamax
What is Topiramate?
Topiramate is an anti-convulsant and is used with other medications to treat certain types of seizures in patients with epilepsy or Lennox-Gastaut syndrome. It is also used to prevent migraine or cluster headaches.
Read more...
See more information, including instructions, precautions, side effects, and interactions.
Reasons Taken
172 patients in the community are taking or have taken Topiramate.
| Reason | # Patients | Percentage of patients |
|---|---|---|
| Other | 88 | 51% |
| Pain | 27 | 15% |
| Migraines | 12 | 6% |
| Headache | 6 | 3% |
| Stiffness/spasticity | 5 | 2% |
| Headaches/ Migraines | 5 | 2% |
| disease-related symptoms | 3 | 1% |
| Slow my MS progress | 2 | 1% |
| Headaches | 2 | 1% |
| Don't know | 2 | 1% |
| Pain, back of head | 2 | 1% |
| Neuropathy pain | 1 | <1% |
| Burning sensation, between shoulders | 1 | <1% |
| Crazy Ants all over :) | 1 | <1% |
| Depression | 1 | <1% |
| L'hermitte sign | 1 | <1% |
| Muscle spasms, neck and shoulders | 1 | <1% |
| Numbness, tingling, pins & needles (paresthesia) | 1 | <1% |
| Neuropathic pain | 1 | <1% |
| Mood swings | 1 | <1% |
| trigeminal neuralgia | 1 | <1% |
| Partial seizures | 1 | <1% |
| Emotional lability | 1 | <1% |
| General health | 1 | <1% |
Duration
How long current patients have been taking Topiramate or how long patients were taking Topiramate before stopping.
Currently taking Topiramate
Stopped taking Topiramate
Patient Reported Evaluations
Results from 22 patient evaluations. See the overall results and all individual evaluations.
Efficacy (Effect based on reason taken)
| Major | 56% | 5 |
|---|---|---|
| Moderate | 11% | 1 |
| Slight | 33% | 3 |
Other
Side-effects (as an overall problem)
| Severe | 14% | 3 |
|---|---|---|
| Moderate | 14% | 3 |
| Mild | 27% | 6 |
| None | 45% | 10 |
Top reported side-effects include: tingly hands & feet, Weight loss, Extreme sleepiness
Summary results are based on 22 individual responses. For more information, see overall results for Adherence, Burden and Cost.
Individual Patient Reported Evaluations (2 of 22)
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- jadedangeleyes
- Sensation: Severe
- Overall: Severe
- Cognition: moderate
- Vision: severe
- Speech: moderate
- Swallowing: moderate
- Upper limb: severe
- Walking: moderate
- See profile
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by jadedangeleyes
Aug 19, 2008
- EfficacyMajor
- Side-effectsMild
- Other
- Advice/Tips
- Don't listen to the rumors of Topamax. If you take this as prescribed by your Dr. and you keep a close eye on the side effects you will be okay. If you pay close attention you might realize you were having these "side-effects" before you were taking this medication and this medication is just making them more pronounced. Stay communicative with your Dr.
- See full evaluation
-
0 helpful marks
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- JesswithMS
- Sensation: Moderate
- Overall: Moderate
- Cognition: moderate
- Vision: moderate
- Speech: moderate
- Swallowing: moderate
- Upper limb: moderate
- Walking: moderate
- See profile
-
by JesswithMS
Aug 15, 2004
- EfficacyNone
- Side-effectsSevere
- Neuropathy pain
- Advice/Tips
- Be very careful with this medication and take as directed. Make sure to follow directions if you need to stop this medication due to serious side effects and withdrawls including seizures.
- See full evaluation
-
0 helpful marks