PatientsLikeMe : Baclofen Treatment Report

You appear to have JavaScript disabled in your browser. PatientsLikeMe relies on JavaScript and Cookies to deliver the best possible experience to you. How do I enable JavaScript?

What is Baclofen?

Baclofen is a skeletal muscle relaxant and antispastic agent used for the treatment of reversible spasticity associated with multiple sclerosis or spinal cord lesions.

Reasons taken & Efficacy

Reasons and Efficacy
Reasons taken	# of patients	# of patients evaluated by
Stiffness/Spasticity	1069	145
Muscle cramping, spasms	171	39
Pain	93	19
Other	70	15
Mobility	23	5
Slow my MS progress	17	1
disease-related symptoms	11	1
General health	11	1
Muscle spasms	6	1
Fatigue	6	1
Spasms	5	0
Bladder problems	4	0
Don't know	4	0
Sensation	3	0
Multiple Sclerosis (MS)	2	1
leg stiffness	2	0
Swallowing	2	0
Trigeminal neuralgia	2	0
Support another treatment	2	0
Muscle twitching (fasciculations)	2	0
only if needed	1	0
Spasticity	1	1
Headaches	1	0
Pain, lower back	1	0
Shocklike spasms, tingling	1	0
Restless Legs Syndrome (RLS)	1	0
Muscle Spasms, feet and toes	1	0
Joint pain, stiffness	1	1
Burning sensation, between shoulders	1	0
pain in legs but a feeling of having to strech them	1	1
Muscle spasms, hands	1	0
twitches and jerks	1	0
Leg spasms (right)	1	0
Muscle aches	1	0
Facial spasms	1	0
Pain, face	1	0
Tremors	1	0
vocal cord spasticity	1	0
Leg stiffness and cramping, bilateral	1	0
Night-time leg spasms	1	0
bladder retention	1	0
Legs shaking	1	0
stiffness in legs	1	0
all the above,,	1	0
MS Hug, or girdle-band sensation, stomach/chest/thighs	1	0
All of the above	1	1
Assistive communication	1	0
tremor	1	0
Numbness, tingling, pins & needles (paresthesia)	1	1
I fell down my stairs and have additional pain and muscle cramping now.	1	0
Brain fog	1	0
Spasticity, muscle cramping, spasms,pain, mobility	1	0
Loss of coordination/balance	1	0
shaking/spasticity	1	0
To stop drop feet	1	0
spasticity legs & fingers	1	0
Hiccups (hiccoughs)	1	0
Stiffness	1	0
Numbness in my hands, arms, legs, and waist	1	0
Calf, feet cramps and muscle spasms	1	0
Insomnia	1	0

See all 61 reasons taken ▼

See all 1471 patients currently taking Baclofen

Mouse over the table for more information

Side Effects

Side effects as an overall problem

Severe	10	5%
Moderate	36	18%
Mild	64	33%
None	85	44%

Most commonly reported side effects

Sleepiness	64	33%
Fatigue	44	23%
Muscle weakness	38	19%
Dry mouth (xerostomia)	33	17%
Made me wobbly when walking	21	11%
Constipation	20	10%
Lightheadedness	15	8%
Urinary frequency	13	7%
Extreme weight gain	12	6%
Shallow breathing	6	3%
Weight gain	3	2%
Nausea	2	1%
co-ordination	1	1%
involuntary muscle movement	1	1%
Muscle Pain	1	1%
Depression with suicidal thoughts	1	1%
loose bowels	1	1%
Nervousness	1	1%

Mild
Moderate
Severe

See all 18 reported side effects ▼

Dosages

Top 10 dosages based on patients currently taking Baclofen. See all 91 dosages ►

0.05 mg all the time (24/7)	0.05mg/mL as needed	0.5 10mg as needed	0.5mg as needed	10 mg all the time (24/7)	10 mg as needed	10mg as needed	115 mcg all the time (24/7)	120 mg all the time (24/7)	150 mg all the time (24/7)	20 mg all the time (24/7)	20 mg as needed	20mg as needed	2 10mg as needed	2 20mg as needed	30mg as needed	3 10mg as needed	3 20mg as needed	40 mg all the time (24/7)	4 20mg as needed	5 20mg daily	5 mg as needed	5mg as needed	80 mg all the time (24/7)	90 mg all the time (24/7)	as needed	daily	0.05 mg daily	0.05 mg/mL daily	0.1 mg daily	0.15 mg daily	0.2 mg daily	10 mg monthly	0.4 mg daily	0.5 mg/mL daily	0.6 mg daily	1 daily	1 mcg daily	1.5 mg daily	2 daily	2 mcg daily	2 mg daily	2.5 mg daily	3 daily	4 daily	5 mg daily	6.25 mg daily	9 daily	10 daily	10 mcg daily	10 mg daily	12 mg daily	15 mg daily	20 daily	20 mcg daily	20 mg daily	24 mcg daily	25 mg daily	30 mg daily	35 mg daily	40 mg daily	44 mg daily	45 mg daily	50 mcg daily	50 mg daily	52 mcg daily	55 mg daily	60 mg daily	65 mg daily	70 mcg daily	70 mg daily	75 mg daily	80 daily	80 mg daily	90 mg daily	100 mg daily	110 mg daily	120 mg daily	130 mcg daily	130 mg daily	160 mg daily	180 mg daily	200 mcg daily	200 mg daily	210 mg daily	270 mg daily	400 mcg daily	500 mg daily	600 mg daily	1800 mg daily	2550 mg daily
2	4	1	1	4	7	58	1	1	1	4	3	13	5	1	1	1	1	2	1	1	1	1	1	1	2	64	20	2	6	9	4	1	1	1	1	2	1	1	1	1	1	1	4	1	9	1	1	1	1	205	1	13	4	1	187	1	9	222	1	138	1	6	1	35	1	2	176	1	1	14	5	2	104	21	26	1	30	1	1	8	3	1	4	1	1	1	1	1	1	1

Stop Reasons

Why Patients Stopped Taking Baclofen (multiple reasons could be selected)
Reason	# Patients	Percentage of patients
Did not seem to work	62	34%
Side effects too severe	59	32%
Other	42	23%
Doctor's advice	22	12%
Course of treatment ended	16	9%
Personal research	4	2%
Expense	2	1%
Not indicated	2	1%

See all 176 patients who’ve stopped taking Baclofen

Duration See details about how long patients take this treatment ▼

Currently Taking Baclofen

0-1 month	1-3 months	3-6 months	6 months-1year	1-2 years	2 years or more
3	21	49	135	146	360

Stopped Taking Baclofen

0-1 month	1-3 months	3-6 months	6 months-1year	1-2 years	2 years or more
22	36	21	38	21	38

Adherence, Burden & Cost See details from patient evaluations ▼

Adherence

Taking treatment as prescribed

Always	121	62%
Usually	57	29%
Sometimes	13	7%
Never	4	2%

Burden

Difficulty being on treatment

Very	5	3%
Somewhat	21	11%
A little	36	18%
Not at all	133	68%

Cost

Paid out of pocket

$200+	1	1%
$100-199	2	1%
$50-99	2	1%
$25-49	10	5%
< $25	128	66%

See more information, including instructions, precautions, side effects, and interactions.

Patient Evaluations

See all 195 patient evaluations

JesswithMS

Sex: F

Sensation: Moderate

Overall: Mild

Cognition: mild

Vision: moderate

Speech: mild

Swallowing: moderate

Upper limb: mild

Walking: moderate

See profile
JesswithMS

as needed

since Aug 20, 2008
Efficacy Moderate for Stiffness/Spasticity
Side Effects Moderate
Advice/Tips Be very slow in your increase on this drug and you must wean yourself off if you need to stop. Make sure to discuss this with your doctor. See full evaluation

possma

Sex: F

Sensation: Moderate

Overall: Mild

Cognition: mild

Vision: moderate

Speech: none

Swallowing: none

Upper limb: moderate

Walking: moderate

See profile
possma

10 mg daily

since Dec 17, 2008
Efficacy Major for Stiffness/Spasticity
Side Effects Severe
Advice/Tips I wouldn't be surprised if this drug was causing some of us to be in a wheelchair - but what do you do with spasms? I find that Magnesium Chelate (All Calm)... See full evaluation

wysiwyg

Sensation: Moderate

Overall: Moderate

Cognition: moderate

Vision: moderate

Speech: moderate

Swallowing: moderate

Upper limb: moderate

Walking: moderate

See profile
wysiwyg

30 mg daily

since Jan 12, 2009
Efficacy Slight for Stiffness/Spasticity
Side Effects Mild
Advice/Tips I'm still not sure this is doing much for my spasticity/stiffness. I do know that if I take it too often it makes me really sleepy. I have not really exp... See full evaluation

See all 195 patient evaluations

Forum

See 105 topics tagged with Baclofen

There are 2502 posts in our forum about Baclofen. Join now and see what people are saying.

Report created on November 20, 2009.

0.05 mg all the time (24/7)	0.05mg/mL as needed	0.5 10mg as needed	0.5mg as needed	10 mg all the time (24/7)	10 mg as needed	10mg as needed	115 mcg all the time (24/7)	120 mg all the time (24/7)	150 mg all the time (24/7)	20 mg all the time (24/7)	20 mg as needed	20mg as needed	2 10mg as needed	2 20mg as needed	30mg as needed	3 10mg as needed	3 20mg as needed	40 mg all the time (24/7)	4 20mg as needed	5 20mg daily	5 mg as needed	5mg as needed	80 mg all the time (24/7)	90 mg all the time (24/7)	as needed	daily	0.05 mg daily	0.05 mg/mL daily	0.1 mg daily	0.15 mg daily	0.2 mg daily	10 mg monthly	0.4 mg daily	0.5 mg/mL daily	0.6 mg daily	1 daily	1 mcg daily	1.5 mg daily	2 daily	2 mcg daily	2 mg daily	2.5 mg daily	3 daily	4 daily	5 mg daily	6.25 mg daily	9 daily	10 daily	10 mcg daily	10 mg daily	12 mg daily	15 mg daily	20 daily	20 mcg daily	20 mg daily	24 mcg daily	25 mg daily	30 mg daily	35 mg daily	40 mg daily	44 mg daily	45 mg daily	50 mcg daily	50 mg daily	52 mcg daily	55 mg daily	60 mg daily	65 mg daily	70 mcg daily	70 mg daily	75 mg daily	80 daily	80 mg daily	90 mg daily	100 mg daily	110 mg daily	120 mg daily	130 mcg daily	130 mg daily	160 mg daily	180 mg daily	200 mcg daily	200 mg daily	210 mg daily	270 mg daily	400 mcg daily	500 mg daily	600 mg daily	1800 mg daily	2550 mg daily
2	4	1	1	4	7	58	1	1	1	4	3	13	5	1	1	1	1	2	1	1	1	1	1	1	2	64	20	2	6	9	4	1	1	1	1	2	1	1	1	1	1	1	4	1	9	1	1	1	1	205	1	13	4	1	187	1	9	222	1	138	1	6	1	35	1	2	176	1	1	14	5	2	104	21	26	1	30	1	1	8	3	1	4	1	1	1	1	1	1	1

0.05 mg all the time (24/7)	0.05mg/mL as needed	0.5 10mg as needed	0.5mg as needed	10 mg all the time (24/7)	10 mg as needed	10mg as needed	115 mcg all the time (24/7)	120 mg all the time (24/7)	150 mg all the time (24/7)	20 mg all the time (24/7)	20 mg as needed	20mg as needed	2 10mg as needed	2 20mg as needed	30mg as needed	3 10mg as needed	3 20mg as needed	40 mg all the time (24/7)	4 20mg as needed	5 20mg daily	5 mg as needed	5mg as needed	80 mg all the time (24/7)	90 mg all the time (24/7)	as needed	daily	0.05 mg daily	0.05 mg/mL daily	0.1 mg daily	0.15 mg daily	0.2 mg daily	10 mg monthly	0.4 mg daily	0.5 mg/mL daily	0.6 mg daily	1 daily	1 mcg daily	1.5 mg daily	2 daily	2 mcg daily	2 mg daily	2.5 mg daily	3 daily	4 daily	5 mg daily	6.25 mg daily	9 daily	10 daily	10 mcg daily	10 mg daily	12 mg daily	15 mg daily	20 daily	20 mcg daily	20 mg daily	24 mcg daily	25 mg daily	30 mg daily	35 mg daily	40 mg daily	44 mg daily	45 mg daily	50 mcg daily	50 mg daily	52 mcg daily	55 mg daily	60 mg daily	65 mg daily	70 mcg daily	70 mg daily	75 mg daily	80 daily	80 mg daily	90 mg daily	100 mg daily	110 mg daily	120 mg daily	130 mcg daily	130 mg daily	160 mg daily	180 mg daily	200 mcg daily	200 mg daily	210 mg daily	270 mg daily	400 mcg daily	500 mg daily	600 mg daily	1800 mg daily	2550 mg daily
2	4	1	1	4	7	58	1	1	1	4	3	13	5	1	1	1	1	2	1	1	1	1	1	1	2	64	20	2	6	9	4	1	1	1	1	2	1	1	1	1	1	1	4	1	9	1	1	1	1	205	1	13	4	1	187	1	9	222	1	138	1	6	1	35	1	2	176	1	1	14	5	2	104	21	26	1	30	1	1	8	3	1	4	1	1	1	1	1	1	1

PatientsLikeMe ™

Baclofen Treatment Report