PatientsLikeMe : Baclofen Treatment Report

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Patients

Taking Baclofen
1456 Patients currently take Baclofen
174 Patients stopped taking Baclofen
i'm a believer Sex: F Sensation: Moderate Overall: Moderate Cognition: moderate Vision: moderate Speech: moderate Swallowing: moderate Upper limb: moderate Walking: moderate See profile i'm a believer 10 mg daily since Feb 19, 1998
MarciaJ720 Sex: F Sensation: Severe Overall: Moderate Cognition: moderate Vision: moderate Speech: none Swallowing: moderate Upper limb: moderate Walking: moderate See profile MarciaJ720 40 mg daily since Jul 15, 1991
bbrown5123 Sex: M Sensation: Moderate Overall: Severe Cognition: severe Vision: moderate Speech: severe Swallowing: moderate Upper limb: moderate Walking: severe See profile bbrown5123 80 mg daily since Nov 01, 2005

Baclofen Treatment Report

Brand Names: Lioresal Oral, Onelaxant R
See also: Baclofen Intrathecal, Lioresal Intrathecal

What is Baclofen? Baclofen is a skeletal muscle relaxant and antispastic agent used for the treatment of reversible spasticity associated with multiple sclerosis or spinal cord lesions.

See more information, including instructions, precautions, side effects, and interactions.

Jump to:: Reasons taken; Dosages; Duration; Patient Evaluations

Reasons taken

1630 patients in the community are taking or have taken Baclofen.

Top 10 (Show all)

Reason	# Patients	Percentage of patients
Stiffness/Spasticity	1033	63%
Muscle cramping, spasms	130	7%
Other	66	4%
Pain	63	3%
Slow my MS progress	15	<1%
Mobility	12	<1%
disease-related symptoms	11	<1%
General health	10	<1%
Muscle spasms	6	<1%
Spasms	5	<1%
Bladder problems	4	<1%
Fatigue	4	<1%
Don't know	4	<1%
leg stiffness	2	<1%
Muscle twitching (fasciculations)	2	<1%
Sensation	2	<1%
Trigeminal neuralgia	2	<1%
Support another treatment	2	<1%
pain in legs but a feeling of having to strech them	1	<1%
Spasticity	1	<1%
Headaches	1	<1%
Pain, lower back	1	<1%
Shocklike spasms, tingling	1	<1%
Muscle Spasms, feet and toes	1	<1%
Joint pain, stiffness	1	<1%
Burning sensation, between shoulders	1	<1%
Muscle spasms, hands	1	<1%
twitches and jerks	1	<1%
vocal cord spasticity	1	<1%
right leg spasms	1	<1%
Muscle aches	1	<1%
Pain, face	1	<1%
Tremors	1	<1%
Legs shaking	1	<1%
Leg stiffness and cramping, bilateral	1	<1%
Night-time leg spasms	1	<1%
bladder retention	1	<1%
Swallowing	1	<1%
stiffness in legs	1	<1%
all the above,,	1	<1%
MS Hug, or girdle-band sensation, stomach/chest/thighs	1	<1%
Multiple Sclerosis (MS)	1	<1%
Numbness, tingling, pins & needles (paresthesia)	1	<1%
All of the above	1	<1%
Brain fog	1	<1%
I fell down my stairs and have additional pain and muscle cramping now.	1	<1%
Loss of coordination/balance	1	<1%
Spasticity, muscle cramping, spasms,pain, mobility	1	<1%
shaking/spasticity	1	<1%
To stop drop feet	1	<1%
Stiffness	1	<1%
Numbness in my hands, arms, legs, and waist	1	<1%
Calf, feet cramps and muscle spasms	1	<1%
Insomnia	1	<1%

Dosages

Based on the patients currently taking Baclofen.

Top 10 (Show all)

All (Show top 10)

0.05 mg all the time (24/7)	0.05mg/mL as needed	0.5 10mg as needed	0.5mg as needed	10 mg all the time (24/7)	10 mg as needed	10mg as needed	115 mcg all the time (24/7)	120 mg all the time (24/7)	150 mg all the time (24/7)	20 mg all the time (24/7)	20 mg as needed	20mg as needed	2 10mg as needed	2 20mg as needed	30mg as needed	3 10mg as needed	3 20mg as needed	400 mcg all the time (24/7)	40 mg all the time (24/7)	4 20mg as needed	5 20mg daily	5 mg as needed	5mg as needed	80 mg all the time (24/7)	90 mg all the time (24/7)	as needed	daily	0.05 mg daily	0.05 mg/mL daily	0.1 mg daily	0.15 mg daily	0.2 mg daily	10 mg monthly	0.4 mg daily	0.5 mg/mL daily	0.6 mg daily	1 daily	1 mcg daily	1.5 mg daily	2 daily	2 mcg daily	2 mg daily	2.5 mg daily	3 daily	4 daily	5 mg daily	6.25 mg daily	9 daily	10 daily	10 mcg daily	10 mg daily	12 mg daily	15 mg daily	20 daily	20 mcg daily	20 mg daily	24 mcg daily	25 mg daily	30 mg daily	35 mg daily	40 mg daily	44 mg daily	45 mg daily	50 mcg daily	50 mg daily	52 mcg daily	55 mg daily	60 mg daily	65 mg daily	70 mcg daily	70 mg daily	75 mg daily	80 daily	80 mg daily	90 mg daily	100 mg daily	110 mg daily	120 mg daily	130 mcg daily	130 mg daily	160 mg daily	180 mg daily	200 mcg daily	200 mg daily	210 mg daily	270 mg daily	400 mcg daily	500 mg daily	600 mg daily	1800 mg daily	2550 mg daily
1	4	1	1	4	7	56	1	1	1	4	3	13	5	1	1	1	1	1	2	1	1	1	1	1	1	2	64	19	2	6	10	4	1	1	1	1	2	1	1	1	1	1	1	4	1	10	1	1	1	1	202	1	13	4	1	184	1	9	217	1	137	1	6	1	36	1	2	176	1	1	13	5	2	103	20	26	1	30	1	1	7	2	1	4	1	1	1	1	1	1	1

Duration

How long current patients have been taking Baclofen or how long patients were taking Baclofen before stopping.

Currently Taking Baclofen

0-1 month	1-3 months	3-6 months	6 months-1year	1-2 years	2 years or more
3	21	48	143	139	367

Stopped Taking Baclofen

0-1 month	1-3 months	3-6 months	6 months-1year	1-2 years	2 years or more
22	35	22	39	20	36

Why Patients Stopped Taking Baclofen (multiple reasons could be selected)
Reason	# Patients	Percentage of patients
Did not seem to work	67	37%
Side effects too severe	61	33%
Other	42	23%
Doctor's advice	22	12%
Course of treatment ended	16	9%
Personal research	4	2%
Expense	3	2%
Not indicated	1	1%

Patient Reported Evaluations

Results from 189 patient evaluations. See the overall results and all individual evaluations.

Efficacy (Effect based on reason taken)

Major	13%	2
Moderate	47%	7
Slight	33%	5
Can't tell	7%	1

Other

Side-effects (as an overall problem)

Severe	5%	10
Moderate	19%	36
Mild	32%	61
None	43%	82

Top reported side-effects include: Sleepiness, Fatigue, Muscle weakness

Summary results are based on 189 individual responses. For more information, see overall results for Adherence, Burden and Cost.

Individual Patient Reported Evaluations (2 of 189)

JesswithMS

Sex: F

Sensation: Moderate

Overall: Moderate

Cognition: moderate

Vision: moderate

Speech: moderate

Swallowing: moderate

Upper limb: moderate

Walking: moderate

See profile
by JesswithMS
Aug 20, 2008

EfficacyModerate
Side-effectsModerate

Stiffness/Spasticity

Advice/Tips: Be very slow in your increase on this drug and you must wean yourself off if you need to stop. Make sure to discuss this with your doctor.

See full evaluation
2 helpful marks

possma

Sex: F

Sensation: Moderate

Overall: Mild

Cognition: mild

Vision: moderate

Speech: none

Swallowing: none

Upper limb: moderate

Walking: moderate

See profile
by possma
Dec 17, 2008

EfficacyMajor
Side-effectsSevere

Stiffness/Spasticity

Advice/Tips: I wouldn't be surprised if this drug was causing some of us to be in a wheelchair - but what do you do with spasms? I find that Magnesium Chelate (All Calm) works wonders! However, you have to boil water and who wants to get out of bed in the middle of the night? Thats when I have to resort to Baclofen!

See full evaluation
1 helpful mark

See all evaluation results for Baclofen

Report created on November 07, 2009.

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