Select a community
MS
Find out more about the PatientsLikeMe
MS Community
Home > Community Treatment Reports > Baclofen Treatment Report

See More Treatments

See all treatments in the PatientsLikeMe system shared by patients just like you.


Baclofen Treatment Report

Brand Names: Lioresal Oral, Onelaxant R
See also: Baclofen Intrathecal, Lioresal Intrathecal

What is Baclofen? Baclofen is a skeletal muscle relaxant and antispastic agent used for the treatment of reversible spasticity associated with multiple sclerosis or spinal cord lesions.

See more information, including instructions, precautions, side effects, and interactions.


Reasons taken

1630 patients in the community are taking or have taken Baclofen.

Top 10 (Show all)

Reason # Patients Percentage of patients
Stiffness/Spasticity 1033 63%
Muscle cramping, spasms 130 7%
Other 66 4%
Pain 63 3%
Slow my MS progress 15 <1%
Mobility 12 <1%
disease-related symptoms 11 <1%
General health 10 <1%
Muscle spasms 6 <1%
Spasms 5 <1%

Dosages

Based on the patients currently taking Baclofen.

Top 10 (Show all)

All (Show top 10)

  0.05 mg all the time (24/7) 0.05mg/mL as needed 0.5 10mg as needed 0.5mg as needed 10 mg all the time (24/7) 10 mg as needed 10mg as needed 115 mcg all the time (24/7) 120 mg all the time (24/7) 150 mg all the time (24/7) 20 mg all the time (24/7) 20 mg as needed 20mg as needed 2 10mg as needed 2 20mg as needed 30mg as needed 3 10mg as needed 3 20mg as needed 400 mcg all the time (24/7) 40 mg all the time (24/7) 4 20mg as needed 5 20mg daily 5 mg as needed 5mg as needed 80 mg all the time (24/7) 90 mg all the time (24/7) as needed daily 0.05 mg daily 0.05 mg/mL daily 0.1 mg daily 0.15 mg daily 0.2 mg daily 10 mg monthly 0.4 mg daily 0.5 mg/mL daily 0.6 mg daily 1 daily 1 mcg daily 1.5 mg daily 2 daily 2 mcg daily 2 mg daily 2.5 mg daily 3 daily 4 daily 5 mg daily 6.25 mg daily 9 daily 10 daily 10 mcg daily 10 mg daily 12 mg daily 15 mg daily 20 daily 20 mcg daily 20 mg daily 24 mcg daily 25 mg daily 30 mg daily 35 mg daily 40 mg daily 44 mg daily 45 mg daily 50 mcg daily 50 mg daily 52 mcg daily 55 mg daily 60 mg daily 65 mg daily 70 mcg daily 70 mg daily 75 mg daily 80 daily 80 mg daily 90 mg daily 100 mg daily 110 mg daily 120 mg daily 130 mcg daily 130 mg daily 160 mg daily 180 mg daily 200 mcg daily 200 mg daily 210 mg daily 270 mg daily 400 mcg daily 500 mg daily 600 mg daily 1800 mg daily 2550 mg daily
  1 Number of Patients: 1 4 Number of Patients: 4 1 Number of Patients: 1 1 Number of Patients: 1 4 Number of Patients: 4 7 Number of Patients: 7 56 Number of Patients: 56 1 Number of Patients: 1 1 Number of Patients: 1 1 Number of Patients: 1 4 Number of Patients: 4 3 Number of Patients: 3 13 Number of Patients: 13 5 Number of Patients: 5 1 Number of Patients: 1 1 Number of Patients: 1 1 Number of Patients: 1 1 Number of Patients: 1 1 Number of Patients: 1 2 Number of Patients: 2 1 Number of Patients: 1 1 Number of Patients: 1 1 Number of Patients: 1 1 Number of Patients: 1 1 Number of Patients: 1 1 Number of Patients: 1 2 Number of Patients: 2 64 Number of Patients: 64 19 Number of Patients: 19 2 Number of Patients: 2 6 Number of Patients: 6 10 Number of Patients: 10 4 Number of Patients: 4 1 Number of Patients: 1 1 Number of Patients: 1 1 Number of Patients: 1 1 Number of Patients: 1 2 Number of Patients: 2 1 Number of Patients: 1 1 Number of Patients: 1 1 Number of Patients: 1 1 Number of Patients: 1 1 Number of Patients: 1 1 Number of Patients: 1 4 Number of Patients: 4 1 Number of Patients: 1 10 Number of Patients: 10 1 Number of Patients: 1 1 Number of Patients: 1 1 Number of Patients: 1 1 Number of Patients: 1 202 Number of Patients: 202 1 Number of Patients: 1 13 Number of Patients: 13 4 Number of Patients: 4 1 Number of Patients: 1 184 Number of Patients: 184 1 Number of Patients: 1 9 Number of Patients: 9 217 Number of Patients: 217 1 Number of Patients: 1 137 Number of Patients: 137 1 Number of Patients: 1 6 Number of Patients: 6 1 Number of Patients: 1 36 Number of Patients: 36 1 Number of Patients: 1 2 Number of Patients: 2 176 Number of Patients: 176 1 Number of Patients: 1 1 Number of Patients: 1 13 Number of Patients: 13 5 Number of Patients: 5 2 Number of Patients: 2 103 Number of Patients: 103 20 Number of Patients: 20 26 Number of Patients: 26 1 Number of Patients: 1 30 Number of Patients: 30 1 Number of Patients: 1 1 Number of Patients: 1 7 Number of Patients: 7 2 Number of Patients: 2 1 Number of Patients: 1 4 Number of Patients: 4 1 Number of Patients: 1 1 Number of Patients: 1 1 Number of Patients: 1 1 Number of Patients: 1 1 Number of Patients: 1 1 Number of Patients: 1 1 Number of Patients: 1  

Duration

How long current patients have been taking Baclofen or how long patients were taking Baclofen before stopping.

Currently Taking Baclofen

0-1 month 1-3 months 3-6 months 6 months-1year 1-2 years 2 years or more
3
21
48
143
139
367

Stopped Taking Baclofen

0-1 month 1-3 months 3-6 months 6 months-1year 1-2 years 2 years or more
22
35
22
39
20
36
Why Patients Stopped Taking Baclofen (multiple reasons could be selected)
Reason # Patients Percentage of patients
Did not seem to work 67 37% Did not seem to work: 37%
Side effects too severe 61 33% Side effects too severe: 33%
Other 42 23% Other: 23%
Doctor's advice 22 12% Doctor's advice: 12%
Course of treatment ended 16 9% Course of treatment ended: 9%
Personal research 4 2% Personal research: 2%
Expense 3 2% Expense: 2%
Not indicated 1 1% Not indicated: 1%

Patient Reported Evaluations

Results from 189 patient evaluations. See the overall results and all individual evaluations.

Efficacy (Effect based on reason taken)

Major 13% 2
Moderate 47% 7
Slight 33% 5
Can't tell 7% 1

Other

Side-effects (as an overall problem)

Severe 5% 10
Moderate 19% 36
Mild 32% 61
None 43% 82

Top reported side-effects include: Sleepiness, Fatigue, Muscle weakness

Summary results are based on 189 individual responses. For more information, see overall results for Adherence, Burden and Cost.

Individual Patient Reported Evaluations (2 of 189)

  • JesswithMS
    Sex: F
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
  • JesswithMS
  • by JesswithMS
    Aug 20, 2008
  • EfficacyModerate
  • Side-effectsModerate
  • Stiffness/Spasticity
Advice/Tips
Be very slow in your increase on this drug and you must wean yourself off if you need to stop. Make sure to discuss this with your doctor.

  • possma
    Sex: F
    Sensation: Moderate
    Overall: Mild
    Cognition: mild
    Vision: moderate
    Speech: none
    Swallowing: none
    Upper limb: moderate
    Walking: moderate
  • possma
  • by possma
    Dec 17, 2008
  • EfficacyMajor
  • Side-effectsSevere
  • Stiffness/Spasticity
Advice/Tips
I wouldn't be surprised if this drug was causing some of us to be in a wheelchair - but what do you do with spasms? I find that Magnesium Chelate (All Calm) works wonders! However, you have to boil water and who wants to get out of bed in the middle of the night? Thats when I have to resort to Baclofen!

See all evaluation results for Baclofen

Report created on November 07, 2009.