PatientsLikeMe : Baclofen Treatment Report

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Patients

Taking Baclofen
1009 Patients currently take Baclofen
113 Patients stopped taking Baclofen
MS DOESNOTHAVEME Sex: F Sensation: Severe Overall: Severe Cognition: moderate Vision: moderate Speech: moderate Swallowing: moderate Upper limb: severe Walking: severe See profile MS DOESNOTHAVEME 30mg daily since Sep 04, 2007
Skooter Sex: F Flare-up: Severe Sensation: Moderate Overall: Moderate Cognition: moderate Vision: moderate Speech: moderate Swallowing: moderate Upper limb: moderate Walking: severe See profile Skooter 40mg daily since Feb 01, 1986
suzy q Sex: F Sensation: Severe Overall: Severe Cognition: severe Vision: severe Speech: moderate Swallowing: moderate Upper limb: moderate Walking: moderate See profile suzy q 20mg daily since Oct 01, 2006

Brand Names: Lioresal Oral, Onelaxant R
See also: Baclofen Intrathecal, Lioresal Intrathecal

What is Baclofen? Baclofen is a skeletal muscle relaxant and antispastic agent used for the treatment of reversible spasticity associated with multiple sclerosis or spinal cord lesions.

See more information, including instructions, precautions, side effects, and interactions.

Jump to:: Reasons Taken; Dosages; Duration; Patient Evaluations

Reasons Taken

1122 patients in the community are taking or have taken Baclofen.

Reason	# Patients	Percentage of patients
Stiffness/spasticity	812	72%
Other	66	5%
Pain	51	4%
Muscle cramping, spasms	26	2%
disease-related symptoms	12	1%
Slow my MS progress	12	1%
General health	8	<1%
Fatigue	5	<1%
Mobility	5	<1%
Bladder problems	4	<1%
Don't know	3	<1%
Trigeminal neuralgia (tic douloureux)	2	<1%
Sensation	2	<1%
Muscle twitching (fasciculations)	2	<1%
bladder retention	1	<1%
Facial spasms	1	<1%
Night-time leg spasms	1	<1%
Burning sensation, between shoulders	1	<1%
MS Hug, or girdle-band sensation, stomach/chest/thighs	1	<1%
MS	1	<1%
Numbness, tingling, pins & needles (paresthesia)	1	<1%
Brain fog	1	<1%
Shocklike spasms, tingling	1	<1%
Loss of coordination/balance	1	<1%
Spasms	1	<1%
Pain, lower back	1	<1%
Stiffness	1	<1%
Numbness in my hands, arms, legs, and waist	1	<1%
Calf, feet cramps and muscle spasms	1	<1%
Muscle spasms, hands	1	<1%
Muscle Spasms, feet and toes	1	<1%
Swallowing	1	<1%
Joint pain, stiffness	1	<1%
twitches and jerks	1	<1%
Support another treatment	1	<1%

Dosages

Based on the patients currently taking Baclofen.

Top 10 (Show all)

All (Show Top 10)

0 mg Daily	0 Daily	5 mg As needed	10 mg As needed	20 mg All the time (24/7)	20 mg As needed	20 mg Daily	30 mg As needed	30 mg Daily	40 mg All the time (24/7)	40 mg As needed	100 mg Daily	120 mg All the time (24/7)	0.05 mg Daily	0.4 Daily	0.5 mg Daily	1 mcg Daily	1 Daily	1.5 mg Daily	2 mcg Daily	2 Daily	2.5 mg Daily	3 Daily	4 mg Daily	4 Daily	5 mg Daily	9 Daily	10 mg As needed	10 mcg Daily	10 mg Daily	10 Daily	15 mg Daily	20 mg All the time (24/7)	20 mcg Daily	20 mg Daily	20 Daily	24 mcg Daily	25 mg Daily	30 mg Daily	35 mg Daily	40 mcg Daily	40 mg Daily	40 Daily	44 mg Daily	45 mg Daily	50 mcg Daily	50 mg Daily	55 mg Daily	60 mg Daily	65 mg Daily	70 mcg Daily	70 mg Daily	75 mg Daily	80 mg Daily	80 Daily	90 mg Daily	100 mg Daily	110 mg Daily	120 mg Daily	130 mcg Daily	130 mg Daily	160 mg Daily	180 mg Daily	200 mcg Daily	200 mg Daily	210 mcg Daily	210 mg Daily	270 mg Daily	400 mcg Daily	500 mg Daily	600 mg Daily	800 mcg Daily	1800 mg Daily	2550 mg Daily
18	52	1	27	1	7	1	3	1	1	2	1	1	1	1	2	1	2	1	1	1	1	4	1	1	12	1	2	1	141	1	13	1	2	133	4	1	8	148	1	1	87	2	1	8	1	21	2	115	1	1	7	4	74	3	15	13	1	20	1	1	5	2	1	4	1	1	1	1	1	1	1	1	1

Duration

How long current patients have been taking Baclofen or how long patients were taking Baclofen before stopping.

Currently taking Baclofen

0-1 month	1-3 months	3-6 months	6 months-1year	1-2 years	2 years or more
20	40	59	98	118	275

Stopped taking Baclofen

0-1 month	1-3 months	3-6 months	6 months-1year	1-2 years	2 years or more
18	21	16	25	9	24

Why Patients Stopped Taking Baclofen (multiple reasons could be selected)
Reason	# Patients	Percentage of patients
Side effects too severe	45	39%
Did not seem to work	45	39%
Other	25	22%
Doctor's advice	14	12%
Course of treatment ended	9	8%
Not indicated	2	2%
Expense	2	2%

Patient Reported Evaluations

Results from 79 patient evaluations. See the overall results and all individual evaluations.

Efficacy (Effect based on reason taken)

Major	28%	18
Moderate	52%	34
Slight	14%	9
None	3%	2
Can't tell	3%	2

Stiffness/spasticity

Side-effects (as an overall problem)

Severe	13%	10
Moderate	16%	13
Mild	28%	22
None	43%	34

Top reported side-effects include: sleepiness, Fatigue, Muscle weakness

Summary results are based on 79 individual responses. For more information, see overall results for Adherence, Burden and Cost.

Individual Patient Reported Evaluations (2 of 79)

JesswithMS

Sex: F

Sensation: Moderate

Overall: Moderate

Cognition: moderate

Vision: moderate

Speech: moderate

Swallowing: moderate

Upper limb: moderate

Walking: moderate

See profile
by JesswithMS
Aug 20, 2008

EfficacyModerate
Side-effectsModerate

Stiffness/spasticity

Advice/Tips: Be very slow in your increase on this drug and you must wean yourself off if you need to stop. Make sure to discuss this with your doctor.

See full evaluation
1 helpful mark

harpgirl

Sex: F

Sensation: Moderate

Overall: Mild

Cognition: moderate

Vision: mild

Speech: none

Swallowing: none

Upper limb: mild

Walking: mild

See profile
by harpgirl
Aug 18, 2008

EfficacyMajor
Side-effectsNone

Stiffness/spasticity

Advice/Tips: Working out correct dosage is a little confusing. Too little, still have problems. Too much, also creates problems.

See full evaluation
0 helpful marks

See all evaluation results for Baclofen

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Baclofen Treatment Report