Select a community
MS
Find out more about the PatientsLikeMe
MS Community
Home > Community Treatment Reports > Topiramate Treatment Report
What is Topiramate?

Topiramate is an anti-convulsant and is used with other medications to treat certain types of seizures in patients with epilepsy or Lennox-Gastaut syndrome. It is also used to prevent migraine or cluster headaches.

Side Effects

Side effects as an overall problem

Severe
7 13%
Moderate
10 19%
Mild
16 30%
None
20 38%

Most commonly reported side effects

Tingling hands and feet
17 32%
Brain fog
11 21%
Word fishing
11 21%
Sleepiness
11 21%
Weight loss
9 17%
Head tingling
8 15%
  • Mild
  • Moderate
  • Severe

Dosages

Top 10 dosages based on patients currently taking Topiramate. See all 21 dosages ►

  30minutes as needed daily 10 mg daily 15 mg daily 20 daily 25 daily 25 mg daily 30 mg daily 50 daily 50 mg daily 75 mg daily 100 mcg daily 100 mg daily 125 mg daily 150 mg daily 200 mg daily 300 mg daily 400 mg daily 600 mg daily 800 mg daily 900 mg daily
  1 Number of Patients: 1 7 Number of Patients: 7 3 Number of Patients: 3 1 Number of Patients: 1 1 Number of Patients: 1 1 Number of Patients: 1 24 Number of Patients: 24 2 Number of Patients: 2 1 Number of Patients: 1 36 Number of Patients: 36 15 Number of Patients: 15 1 Number of Patients: 1 66 Number of Patients: 66 4 Number of Patients: 4 14 Number of Patients: 14 31 Number of Patients: 31 5 Number of Patients: 5 9 Number of Patients: 9 1 Number of Patients: 1 2 Number of Patients: 2 1 Number of Patients: 1  

Stop Reasons

Why Patients Stopped Taking Topiramate (multiple reasons could be selected)
Reason # Patients Percentage of patients
Side effects too severe
28 46% Side effects too severe: 46%
Doctor's advice
14 23% Doctor's advice: 23%
Did not seem to work
13 21% Did not seem to work: 21%
Other
7 11% Other: 11%
Expense
4 7% Expense: 7%
Not indicated
3 5% Not indicated: 5%
Personal research
1 2% Personal research: 2%
Course of treatment ended
1 2% Course of treatment ended: 2%

See all 61 patients who’ve stopped taking Topiramate

Duration See details about how long patients take this treatment ▼

Currently Taking Topiramate

0-1 month 1-3 months 3-6 months 6 months-1year 1-2 years 2 years or more
1
7
11
21
24
53

Stopped Taking Topiramate

0-1 month 1-3 months 3-6 months 6 months-1year 1-2 years 2 years or more
7
13
9
11
12
9

Adherence, Burden & Cost See details from patient evaluations ▼

Adherence

Taking treatment as prescribed

Always
49 92%
Usually
3 6%
Sometimes
1 2%
Never
0 0%

Burden

Difficulty being on treatment

Very
8 15%
Somewhat
5 9%
A little
4 8%
Not at all
36 68%

Cost

Paid out of pocket

$200+
1 2%
$100-199
1 2%
$50-99
4 8%
$25-49
10 19%
< $25
20 38%

See more information, including instructions, precautions, side effects, and interactions.

Report created on November 21, 2009.