PatientsLikeMe : Interferon beta-1b SubQ Injection Treatment Report

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Interferon beta-1b SubQ Injection Treatment Report

Most Popular Brands: Betaseron, Betaferon

See patients taking Interferon beta-1b SubQ Injection

What is Interferon beta-1b SubQ Injection?

Interferon beta-1b is a drug in the interferon family used to treat multiple sclerosis. It is administered by sub-cutaneous injection and has been shown to slow the advance of the affliction as well as reduce the frequency of attacks.

Reasons taken & Efficacy

Reasons and Efficacy
Reasons taken	# of patients	# of patients evaluated by
Slow my MS progress	671	131
Other	22	5
Fatigue	9	4
General health	9	6
Difficulty walking	8	2
Don't know	7	1
Stiffness/Spasticity	7	2
Mobility	5	3
Vision	4	3
Sensation	2	1
disease-related symptoms	2	0
Brain fog	2	0
Migraine Headaches	1	0
allergic to last treatments	1	1
right foot drop	1	1
Pain	1	0
Reduce lesion in brain and spinal cord per MRI	1	1
worsening balance	1	1
Double vision (diplopia)	1	1
Cognition	1	0
Reduce number of attacks	1	1
Slow progress of MS	1	1
Left arm pain	1	1
dr prescribed	1	0
Lost sight in right eye	1	0
Balance problems	1	0
stop or at least lessen exacerbations	1	0
ms got more progressed	1	1
Excessive daytime sleepiness (somnolence)	1	0
Bladder problems	1	0

See all 30 reasons taken ▼

See all 590 patients currently taking Interferon beta-1b SubQ Injection

Mouse over the table for more information

Side Effects

Side effects as an overall problem

Severe	20	13%
Moderate	49	33%
Mild	56	38%
None	24	16%

Most commonly reported side effects

Flu-like symptoms	79	53%
Injection site pain	76	51%
Bruising	65	44%
feeling lousy	53	36%
Headaches	43	29%
Depression	41	28%
cant sleep/wake up	36	24%
Fever	25	17%
elevated liver enzymes	17	11%
Injection site reaction	12	8%
Suicidal thoughts	10	7%
Chills/fever	5	3%
stiffness in legs day after	2	1%
Site reactions, redness, swelling, itching	2	1%
cotton wool spots	1	1%
reminder of lower condition	1	1%
excessive sweating	1	1%
spinal pain	1	1%
Liver failure (acute)	1	1%
leukopenia	1	1%
generalized lymphadenopathy resembling low grade non-Hodgkin lymphoma on CT	1	1%
redness and red spots	1	1%
low white blood cells to 2.7	1	1%
chills without fever	1	1%
lowered white blood count	1	1%
huge red spots	1	1%
Fatigue day after treatment	1	1%
put me in a coma	1	1%
mild	1	1%
throbbing legs	1	1%
Fatigue and sleepiness	1	1%
Body Aches	1	1%
low white blood cells	1	1%
pain from medicine going in	1	1%
Low Red blood cell count	1	1%
Shaky hands	1	1%
Fatigue	1	1%

Mild
Moderate
Severe

See all 37 reported side effects ▼

Dosages

Top 10 dosages based on patients currently taking Interferon beta-1b SubQ Injection. See all 82 dosages ►

0.03mg as needed	0.25mg as needed	0.275mg as needed	0.3 mg all the time (24/7)	0.3 mg as needed	0.3mg as needed	0.44mcg as needed	15mg as needed	1mcg as needed	1mg as needed	20mg as needed	250 mcg as needed	daily	weekly	0.125 mg weekly	0.3 mg every other week	0.25 mg weekly	0.075 mg every other day	0.04 mg daily	0.3 mg weekly	0.3 mg daily	0.25 mcg	0.25 mg	0.25 mg every other day	0.9 mg weekly	4.2 mg monthly	1 mg weekly	4.5 mg monthly	0.3 mcg	0.3 mg	0.3 mg every other day	1.05 mg weekly	0.44 mg	0.45 mg every other day	0.25 mg daily	0.5	0.5 mg every other day	0.54 mg every other day	0.3 mcg daily	0.3 mg daily	0.3 mg one time	0.75 mcg	0.75 mg	0.75 mL every other day	3 mcg weekly	3 mg weekly	1	1 g	1 g every other day	1 mcg	1 mg	1 mg every other day	1 mL every other day	1 other every other day	4 mg weekly	1.3 mg	1.5 mg	1 mg daily	2 mg	3 mg	3 mg every other day	15 mg weekly	2.5 mcg daily	3 mg daily	21 mcg	25 mg	30 mg	44 mcg	44 mcg	44 mg	300 mg weekly	100 mcg	100 mg	100 mL every other day	200	200 mcg	200 mg	250 mcg	250 mcg every other day	300 mg	250 mcg daily	8000000 intl units daily
1	1	1	2	2	7	1	1	1	2	1	1	10	9	1	1	1	3	1	10	1	1	9	4	7	1	2	2	2	43	195	1	1	1	1	1	1	1	3	99	1	1	3	1	1	2	2	1	1	2	21	6	2	1	1	1	2	11	1	3	1	1	1	1	1	1	1	1	1	2	1	1	3	1	1	1	2	1	1	1	1	1

Stop Reasons

Why Patients Stopped Taking Interferon beta-1b SubQ Injection (multiple reasons could be selected)
Reason	# Patients	Percentage of patients
Side effects too severe	109	36%
Did not seem to work	108	36%
Doctor's advice	108	36%
Other	66	22%
Personal research	7	2%
Not indicated	5	2%
Expense	5	2%
Course of treatment ended	5	2%

See all 292 patients who’ve stopped taking Interferon beta-1b SubQ Injection

Duration See details about how long patients take this treatment ▼

Currently Taking Interferon beta-1b SubQ Injection

0-1 month	1-3 months	3-6 months	6 months-1year	1-2 years	2 years or more
0	9	19	52	69	113

Stopped Taking Interferon beta-1b SubQ Injection

0-1 month	1-3 months	3-6 months	6 months-1year	1-2 years	2 years or more
10	26	39	43	58	113

Adherence, Burden & Cost See details from patient evaluations ▼

Adherence

Taking treatment as prescribed

Always	111	74%
Usually	36	24%
Sometimes	2	1%
Never	0	0%

Burden

Difficulty being on treatment

Very	16	11%
Somewhat	34	23%
A little	68	46%
Not at all	31	21%

Cost

Paid out of pocket

$200+	10	7%
$100-199	7	5%
$50-99	22	15%
$25-49	33	22%
< $25	44	30%

See more information, including instructions, precautions, side effects, and interactions.

Patient Evaluations

See all 149 patient evaluations

trey06

Sex: M

Sensation: Moderate

Overall: Mild

Cognition: moderate

Vision: mild

Speech: moderate

Swallowing: mild

Upper limb: moderate

Walking: moderate

See profile
trey06

0.3 mg daily

since Mar 14, 2009
Efficacy Moderate for Slow my MS progress
Side Effects Mild
Advice/Tips Its effect on My lesions is Great! thats all I care about If it slows the MS that makes it worth it!! See full evaluation

Flowers

Sex: F

Sensation: Severe

Overall: Moderate

Cognition: severe

Vision: moderate

Speech: moderate

Swallowing: moderate

Upper limb: moderate

Walking: moderate

See profile
Flowers

since Nov 06, 2000
Efficacy Can't tell for Slow my MS progress
Side Effects Severe
Advice/Tips really research it first See full evaluation

feathers4me

Sex: F

Sensation: Severe

Overall: Moderate

Cognition: moderate

Vision: moderate

Speech: mild

Swallowing: mild

Upper limb: moderate

Walking: severe

See profile
feathers4me

0.3 mg weekly

since Feb 04, 2008
Efficacy Slight for Slow my MS progress
Side Effects Moderate
See full evaluation

See all 149 patient evaluations

Forum

See 96 topics tagged with Betaseron

There are 2450 posts in our forum about Interferon beta-1b SubQ Injection. Join now and see what people are saying.

Report created on November 23, 2009.

0.03mg as needed	0.25mg as needed	0.275mg as needed	0.3 mg all the time (24/7)	0.3 mg as needed	0.3mg as needed	0.44mcg as needed	15mg as needed	1mcg as needed	1mg as needed	20mg as needed	250 mcg as needed	daily	weekly	0.125 mg weekly	0.3 mg every other week	0.25 mg weekly	0.075 mg every other day	0.04 mg daily	0.3 mg weekly	0.3 mg daily	0.25 mcg	0.25 mg	0.25 mg every other day	0.9 mg weekly	4.2 mg monthly	1 mg weekly	4.5 mg monthly	0.3 mcg	0.3 mg	0.3 mg every other day	1.05 mg weekly	0.44 mg	0.45 mg every other day	0.25 mg daily	0.5	0.5 mg every other day	0.54 mg every other day	0.3 mcg daily	0.3 mg daily	0.3 mg one time	0.75 mcg	0.75 mg	0.75 mL every other day	3 mcg weekly	3 mg weekly	1	1 g	1 g every other day	1 mcg	1 mg	1 mg every other day	1 mL every other day	1 other every other day	4 mg weekly	1.3 mg	1.5 mg	1 mg daily	2 mg	3 mg	3 mg every other day	15 mg weekly	2.5 mcg daily	3 mg daily	21 mcg	25 mg	30 mg	44 mcg	44 mcg	44 mg	300 mg weekly	100 mcg	100 mg	100 mL every other day	200	200 mcg	200 mg	250 mcg	250 mcg every other day	300 mg	250 mcg daily	8000000 intl units daily
1	1	1	2	2	7	1	1	1	2	1	1	10	9	1	1	1	3	1	10	1	1	9	4	7	1	2	2	2	43	195	1	1	1	1	1	1	1	3	99	1	1	3	1	1	2	2	1	1	2	21	6	2	1	1	1	2	11	1	3	1	1	1	1	1	1	1	1	1	2	1	1	3	1	1	1	2	1	1	1	1	1

0.03mg as needed	0.25mg as needed	0.275mg as needed	0.3 mg all the time (24/7)	0.3 mg as needed	0.3mg as needed	0.44mcg as needed	15mg as needed	1mcg as needed	1mg as needed	20mg as needed	250 mcg as needed	daily	weekly	0.125 mg weekly	0.3 mg every other week	0.25 mg weekly	0.075 mg every other day	0.04 mg daily	0.3 mg weekly	0.3 mg daily	0.25 mcg	0.25 mg	0.25 mg every other day	0.9 mg weekly	4.2 mg monthly	1 mg weekly	4.5 mg monthly	0.3 mcg	0.3 mg	0.3 mg every other day	1.05 mg weekly	0.44 mg	0.45 mg every other day	0.25 mg daily	0.5	0.5 mg every other day	0.54 mg every other day	0.3 mcg daily	0.3 mg daily	0.3 mg one time	0.75 mcg	0.75 mg	0.75 mL every other day	3 mcg weekly	3 mg weekly	1	1 g	1 g every other day	1 mcg	1 mg	1 mg every other day	1 mL every other day	1 other every other day	4 mg weekly	1.3 mg	1.5 mg	1 mg daily	2 mg	3 mg	3 mg every other day	15 mg weekly	2.5 mcg daily	3 mg daily	21 mcg	25 mg	30 mg	44 mcg	44 mcg	44 mg	300 mg weekly	100 mcg	100 mg	100 mL every other day	200	200 mcg	200 mg	250 mcg	250 mcg every other day	300 mg	250 mcg daily	8000000 intl units daily
1	1	1	2	2	7	1	1	1	2	1	1	10	9	1	1	1	3	1	10	1	1	9	4	7	1	2	2	2	43	195	1	1	1	1	1	1	1	3	99	1	1	3	1	1	2	2	1	1	2	21	6	2	1	1	1	2	11	1	3	1	1	1	1	1	1	1	1	1	2	1	1	3	1	1	1	2	1	1	1	1	1

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