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What is Tracheostomy?

A tracheostomy or tracheotomy is a surgical procedure whereby an artificial airway is inserted into the windpipe (trachea). In ALS/MND they may be used as a short-term measure in the treatment of pulmonary infections such as pneumonia, or in the long-term in combination with a ventilator.

Reported Purpose & Efficacy

Reasons and Efficacy
Purpose # of patients
# of patients with evaluations Efficacy
Major
Moderate
Slight
None
Can’t tell
Breathing difficulty 22 2 Efficacy_major
Other 20 0
ALS (Amyotrophic Lateral Sclerosis) 17 0
General health 9 0
Excess saliva 2 0
Shortness of breath (dyspnea) 2 0

See all 47 patients currently having Tracheostomy

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Reported Side Effects

Side effects as an overall problem

Severe
 0
Moderate
 0
Mild
 3
None
 0

Commonly reported side effects, conditions, and hospitalizations associated with Tracheostomy

Hospitalization 11
Excess mucus 1
Loss of voice 1
Allergic reaction 1

Reported Stop Reasons

Why Patients Stopped Having Tracheostomy (multiple reasons could be selected)
Reason # Patients Percentage of patients
Not indicated 21   Not indicated: 100%

See all 21 patients who’ve stopped having Tracheostomy

Reported Duration See details about how long patients take this treatment ▼

Currently Having Tracheostomy

A bar graph

0-1 month 1-3 months 3-6 months 6 months-1year 1-2 years 2 years or more
0
0
0
0

Reported Adherence, Burden & Cost See details from patient evaluations ▼

Adherence

Taking treatment as prescribed

Adherence of Tracheostomy

Always
 3 100%
Usually
 0 0%
Sometimes
 0 0%
Never
 0 0%

Burden

Difficulty being on treatment

Burden of Tracheostomy

Very
 0 0%
Somewhat
 0 0%
A little
 2 67%
Not at all
 1 33%

Cost

Paid out of pocket

Cost of Tracheostomy

$200+
 0 0%
$100-199
 0 0%
$50-99
 0 0%
$25-49
 0 0%
< $25
 1 100%

Report created on May 27, 2012.