PatientsLikeMe ™

I lost my mother to ALS in 1998. She was 44 years old and left behind her passion for life and love--my passion is just directed toward raising awareness for ALS. Three others in my family have also lost their lives to ALS. At this time, I do not know if I carry the ALS gene (SOD1 or other).

I am active in my ALSA chapters in Oregon and Washington-but I am also a huge advocate for ALS TDI and the MDA.

I am raising three children, they are amazing, is there even a word to describe motherhood? ♥ Their father is currently Active Duty Navy and we've been a military family for over 16 years now.

MY MOTHER, Jane Kosydar, not long before she lost her ALS battle.