PatientsLikeMe ™

Summary
Member since: May 2008

About Me
Progressive paralysis. Cannot move anything below neck. Assisted respiration imminent. Suspected cause is Gardasil vaccination. One year progression. Tried long course of prednisone and phosphoresis vs autoimmune disorder. Not mitochondrial disease or due to main DNA chromosome. Currently trying lithium, ritulek, and third course of cytoxan. Motor neuron disease is default diagnosis. Have seen all of the most prominent specialists. Patient is known nationally by now. We are desperate. Nothing works.