My name is Steve. I was 38 when I was DX'd in October 06. I think I am fairly atypical in that I moved on to accepting ALS immediately after DX. I would rather not have ALS, but I have never seen that worrying does any good and I choose not to waste my time lamenting what I no longer can do. On the contrary, I accept my new challenges and take a great deal of satisfaction in adapting to my losses. I am disturbed that so few pALS accept a vent and hope my efforts to create a residential pALS co-op will provide a living environment such that pALS choose life over death.
ALS Public Registry
