SmoothS's Journal

SmoothS: Sex: M; Data Quality: 2 stars; ALS: 6 yrs; Wheelchair Feeding tube; Bulbar: severe; Arms: severe; Chest: none; Legs: severe

SmoothS: Male, 43 years; Chelsea (Boston), MA

Primary Condition: ALS
First symptom: Sep 2005
Diagnosis: Oct 2006

2 stars
SmoothS lost a star • May 10, 2012
Check out your stars page to see how to get your stars back!
SmoothS added the tag ALS Residence to ALSRI.org • Mar 08, 2012
Updated outcome

QOL
- Good Social
- Good Mental
- Worst Physical
SmoothS completed the QOL survey for Feb 10, 2012 • Feb 10, 2012
What sort of things are impacting your quality of life?
Weight

152 lb

BMI

20.6
SmoothS updated hisyour weight for Feb 10, 2012 • Feb 10, 2012
Is there anything in particular that influenced this weight increase?
New evaluation

Rollator Treatment Evaluation
- Efficacy for Balance problems: Major
- Side Effects: None
- Adherence: Always
- Burden: A little
SmoothS added a treatment evaluation for Rollator from Feb 15, 2011 • Feb 10, 2012
Stopped treatment

Rollator
- Stopped: Feb 15, 2011
- Reason: Course of treatment ended
SmoothS stopped taking the treatment Rollator • Feb 10, 2012
What else would you like to share about stopping this treatment?
FRS

14
- severe Head
- severe Arms
- none Torso
- severe Legs
SmoothS completed the FRS survey for Feb 10, 2012 • Feb 10, 2012
Congratulations, your FRS is higher. What sort of things are helping your ALS symptoms?
Added

Symptom Update
- severe Inability to manipulate tongue
- severe Fingers curl
- moderate Cough
- moderate Atrophy of muscles
- none Urinary urgency
- severe Trigger finger or thumb
- severe Inability to wipe self after bowel movement
- severe Excess saliva
- mild Choking
- moderate Startle easily
- severe Loss of balance
- severe Difficulty speaking (dysarthria)
- moderate Claw-like cramps in hands
- mild Anxious mood
- severe Voice changes
- mild Uncontrollable laughter
- mild Emotional lability
- mild Bulbar symptoms
- severe Atrophy of hand muscles
- none Tongue tremor
- mild Muscle twitching in arms
- severe Loss of coordination
- severe Light sensitivity (photophobia)
- mild Fatigue
- severe Difficulty projecting voice
- severe Walking difficult without aid
- severe Stiffness/Spasticity
- mild Sensitivity to materials
- none Pain
- mild Cramps under chin
- none Choking on food
- severe Staggering walk
- severe Speech problems
- severe Slurred speech
- moderate Heightened sense of smell (hyperosmia)
- mild Fasciculations
- severe Coughing while drinking
- severe Balance problems
- severe Loss of manual dexterity
- severe Laryngospasm
- mild Cramps in feet
- none Coughing while eating
- severe Weakness in hands
- severe Generalized weakness (asthenia)
- mild Excessive yawning
- none Depressed mood
- none Bit tongue
- none Biting inner lip
- moderate Weakness in legs
- severe Weakness in arms
- severe Hard sneezing
- mild Excessive daytime sleepiness (somnolence)
- none Constipation
- moderate Clonus spasms
- none Insomnia
- mild Ineffective cough
- severe Choking on liquids
- none Breathing difficulty
- none Bladder problems
- See more
SmoothS updated hisyour symptoms for Feb 10, 2012 • Feb 10, 2012
What else would you like to share about these symptoms?
3 stars
SmoothS earned a star! • Feb 10, 2012
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About SmoothS