catsmeow's Journal

catsmeow: Sex: F; Data Quality: 1 star; ALS: 4 yrs; Bi-Pap; Bulbar: none; Arms: mild; Chest: none; Legs: moderate

catsmeow: Female, 55 years; Anaheim, CA

Primary Condition: ALS and 5 more ▼

First symptom: Apr 2009
Diagnosis: May 2010

catsmeow

Sex: F

Data Quality: 1 star

Bulbar: none

Arms: mild

Chest: none

Legs: moderate

I am: g

I have:
ALS

1 star
catsmeow lost a star Dec 31, 2012
catsmeow

Sex: F

Data Quality: 1 star

Bulbar: none

Arms: mild

Chest: none

Legs: moderate

I am: g

I have:
ALS

2 stars
catsmeow earned a star! Dec 30, 2012
catsmeow

Sex: F

Data Quality: 1 star

Bulbar: none

Arms: mild

Chest: none

Legs: moderate

I am: g

I have:
ALS

1 star
catsmeow lost a star Dec 30, 2012
catsmeow

Sex: F

Data Quality: 1 star

Bulbar: none

Arms: mild

Chest: none

Legs: moderate

I am: g

I have:
ALS

2 stars
catsmeow lost a star Apr 24, 2012
catsmeow

Sex: F

Data Quality: 1 star

Bulbar: none

Arms: mild

Chest: none

Legs: moderate

I am: g

I have:
ALS
Mood Map
- Function
- Distress
- External Stress
- Depression
- Emotional
- Compulsion
- Anxiety
- Mania
catsmeow completed the Mood Map survey for Mar 8, 2012 Mar 08, 2012
catsmeow

Sex: F

Data Quality: 1 star

Bulbar: none

Arms: mild

Chest: none

Legs: moderate

I am: g

I have:
ALS
Hospitalization for Gastrointestinal (GI) bleeding and EGD (Esophagogastroduodenoscopy)
- Discharged: Feb 10, 2012
catsmeow added a hospitalization for Gastrointestinal (GI) bleeding and EGD (Esophagogastroduodenoscopy) Mar 08, 2012
catsmeow

Sex: F

Data Quality: 1 star

Bulbar: none

Arms: mild

Chest: none

Legs: moderate

I am: g

I have:
ALS
EGD (Esophagogastroduodenoscopy)
- - Started: ?
  - Dosage: ?
- Purpose:
catsmeow added the treatment EGD (Esophagogastroduodenoscopy) Mar 08, 2012
catsmeow

Sex: F

Data Quality: 1 star

Bulbar: none

Arms: mild

Chest: none

Legs: moderate

I am: g

I have:
ALS
Symptom Update
- mild Constant tremors
- none Excessive yawning
- none Low blood sugar (hypoglycemia)
- moderate Bladder problems
- none Insomnia
- mild Constipation
- none Blurry vision
- moderate Depressed mood
- mild Fasciculations
- mild Irritability
- moderate Urinary frequency
- mild Elevated blood pressure
- mild Excessive thirst (polydipsia)
- none Grandiose thinking
- mild Stiffness/Spasticity
- moderate Obstructive sleep apnea
- none Pain
- none Excitability
- moderate Fatigue
- none Flight of ideas
- mild High Cholesterol
- none Anxious mood
- moderate Emotional lability
- none better mood and fatigue management
- mild Excess saliva
- See more
catsmeow updated her symptoms for Mar 8, 2012 Mar 08, 2012
catsmeow

Sex: F

Data Quality: 1 star

Bulbar: none

Arms: mild

Chest: none

Legs: moderate

I am: g

I have:
ALS

Good
catsmeow added an InstantMe for Jan 25, 2012 Jan 25, 2012 7:15PM

Transportation issues are resolving/
catsmeow

Sex: F

Data Quality: 1 star

Bulbar: none

Arms: mild

Chest: none

Legs: moderate

I am: g

I have:
ALS

144 lb BMI: 24.0
catsmeow updated her weight for Nov 25, 2011 Jan 25, 2012
catsmeow

Sex: F

Data Quality: 1 star

Bulbar: none

Arms: mild

Chest: none

Legs: moderate

I am: g

I have:
ALS

140 lb BMI: 23.3
catsmeow updated her weight for Jan 25, 2012 Jan 25, 2012
catsmeow

Sex: F

Data Quality: 1 star

Bulbar: none

Arms: mild

Chest: none

Legs: moderate

I am: g

I have:
ALS
QOL
- Good Social
- Good Mental
- Bad Physical
catsmeow completed the QOL survey for Jan 25, 2012 Jan 25, 2012
catsmeow

Sex: F

Data Quality: 1 star

Bulbar: none

Arms: mild

Chest: none

Legs: moderate

I am: g

I have:
ALS
Mood Map
- Function
- Distress
- External Stress
- Depression
- Emotional
- Compulsion
- Anxiety
- Mania
catsmeow completed the Mood Map survey for Jan 25, 2012 Jan 25, 2012
catsmeow

Sex: F

Data Quality: 1 star

Bulbar: none

Arms: mild

Chest: none

Legs: moderate

I am: g

I have:
ALS

FVC: 82%

catsmeow completed the FVC survey for Jan 24, 2012 Jan 25, 2012
catsmeow

Sex: F

Data Quality: 1 star

Bulbar: none

Arms: mild

Chest: none

Legs: moderate

I am: g

I have:
ALS
FRS: 32
- none Head
- mild Arms
- none Torso
- moderate Legs
catsmeow completed the FRS survey for Jan 25, 2012 Jan 25, 2012
catsmeow

Sex: F

Data Quality: 1 star

Bulbar: none

Arms: mild

Chest: none

Legs: moderate

I am: g

I have:
ALS
Stopped: Wrist splints
- Stopped: May 15, 2004
- Reason: Course of treatment ended
catsmeow stopped taking the treatment Wrist splints Jan 25, 2012
catsmeow

Sex: F

Data Quality: 1 star

Bulbar: none

Arms: mild

Chest: none

Legs: moderate

I am: g

I have:
ALS
NatureMade Super B-Complex Treatment Evaluation
- Perceived effectiveness for General health: ?Can't tell
- Side Effects: None
- Adherence: Usually
- Burden: Not at all
Cost

$25-49 monthly

catsmeow added a treatment evaluation for NatureMade Super B-Complex from Jun 1, 2011 Jan 25, 2012
catsmeow

Sex: F

Data Quality: 1 star

Bulbar: none

Arms: mild

Chest: none

Legs: moderate

I am: g

I have:
ALS
Stopped: NatureMade Super B-Complex
- Stopped: Jun 1, 2011
- Reason: Other
catsmeow stopped taking the treatment NatureMade Super B-Complex Jan 25, 2012
catsmeow

Sex: F

Data Quality: 1 star

Bulbar: none

Arms: mild

Chest: none

Legs: moderate

I am: g

I have:
ALS
CoQ10 (CoEnzyme Q10) Treatment Evaluation
- Perceived effectiveness for ALS (Amyotrophic Lateral Sclerosis): ?Can't tell
- Side Effects: None
- Adherence: Usually
- Burden: A little
Cost

< $25 monthly

catsmeow added a treatment evaluation for CoQ10 (CoEnzyme Q10) from Jun 1, 2011 Jan 25, 2012
catsmeow

Sex: F

Data Quality: 1 star

Bulbar: none

Arms: mild

Chest: none

Legs: moderate

I am: g

I have:
ALS
Stopped: CoQ10 (CoEnzyme Q10)
- Stopped: Jun 1, 2011
- Reason: Did not seem to work and Expense
catsmeow stopped taking the treatment CoQ10 (CoEnzyme Q10) Jan 25, 2012
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