1820-full
StandUpLong
Sex: F
Data Quality: 0 stars
MS: 11 yrs
Type: Secondary Progressive
Sensation: Severe
Overall: Severe
Cognition: moderate
Vision: severe
Speech: moderate
Swallowing: moderate
Upper limb: moderate
Walking: severe
StandUpLong
Female, 52 years
Bourbonnais, IL
Primary Condition
MS
Type
Secondary Progressive
First symptom
Diagnosis
Interests
Advocacy, Alternative Medicine and 2 more
See more
  1. 1820-thumb
    StandUpLong
    Sex: F
    Data Quality: 0 stars
    Sensation: Severe
    Overall: Severe
    Cognition: moderate
    Vision: severe
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: severe
    I am: b
    I have:
    MS

    MSRS: 85

    • Moderate Cognition
    • Total Disability Vision
    • Moderate Speech
    • Moderate Swallowing
    • Moderate Upper Limb
    • Total Disability Walking
    • Total Disability Sensation
    completed the MSRS survey for Jul 17, 2012 Nov 13, 2012
  2. 1820-thumb
    StandUpLong
    Sex: F
    Data Quality: 0 stars
    Sensation: Severe
    Overall: Severe
    Cognition: moderate
    Vision: severe
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: severe
    I am: b
    I have:
    MS

    QOL

    • Good Social
    • Good Mental
    • Bad Physical
    completed the QOL survey for Nov 12, 2012 Nov 13, 2012
  3. 1820-thumb
    StandUpLong
    Sex: F
    Data Quality: 0 stars
    Sensation: Severe
    Overall: Severe
    Cognition: moderate
    Vision: severe
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: severe
    I am: b
    I have:
    MS

    Updated Photo

    updated her profile picture Nov 13, 2012
  4. 1820-thumb
    StandUpLong
    Sex: F
    Data Quality: 0 stars
    Sensation: Severe
    Overall: Severe
    Cognition: moderate
    Vision: severe
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: severe
    I am: b
    I have:
    MS

    Tagged Topic

    added the tag feline to MS PETS, a place to brag, boast, share stories and pictures of your animals. Nov 13, 2012
  5. 1820-thumb
    StandUpLong
    Sex: F
    Data Quality: 0 stars
    Sensation: Severe
    Overall: Severe
    Cognition: moderate
    Vision: severe
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: severe
    I am: b
    I have:
    MS

    Updated Bio

    Diagnosed in 2001 began treatment 2007. I love the outdoors , photography and writing . I am creative and inspirational . I have blogs that keep me entertained and busy . I am a Christian .

    updated her bio Nov 13, 2012
  6. 1820-thumb
    StandUpLong
    Sex: F
    Data Quality: 0 stars
    Sensation: Severe
    Overall: Severe
    Cognition: moderate
    Vision: severe
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: severe
    I am: b
    I have:
    MS

    Symptom Update

    • moderate Abdominal cramps
    • severe Aching burning throbbing body pain
    • severe Anxiety and frustration
    • mild Anxious mood
    • severe Arthritis pain
    • moderate Ataxia (lack of coordination)
    • See more
    updated her symptoms for Jul 17, 2012 Jul 17, 2012

    difficulty with bowel elimination . Increasingly now to do so manually .

  7. 1820-thumb
    StandUpLong
    Sex: F
    Data Quality: 0 stars
    Sensation: Severe
    Overall: Severe
    Cognition: moderate
    Vision: severe
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: severe
    I am: b
    I have:
    MS

    QOL

    • Bad Social
    • Bad Mental
    • Bad Physical
    completed the QOL survey for Jul 17, 2012 Jul 17, 2012
  8. 1820-thumb
    StandUpLong
    Sex: F
    Data Quality: 0 stars
    Sensation: Severe
    Overall: Severe
    Cognition: moderate
    Vision: severe
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: severe
    I am: b
    I have:
    MS

    Bad

    added an InstantMe for Jul 17, 2012 Jul 17, 2012 5:23AM
  9. 1820-thumb
    StandUpLong
    Sex: F
    Data Quality: 0 stars
    Sensation: Severe
    Overall: Severe
    Cognition: moderate
    Vision: severe
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: severe
    I am: b
    I have:
    MS

    QOL

    • Good Social
    • Good Mental
    • Bad Physical
    completed the QOL survey for Mar 14, 2012 Mar 14, 2012
  10. 1820-thumb
    StandUpLong
    Sex: F
    Data Quality: 0 stars
    Sensation: Severe
    Overall: Severe
    Cognition: moderate
    Vision: severe
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: severe
    I am: b
    I have:
    MS

    MSRS: 67

    • Mild Cognition
    • Moderate Vision
    • Mild Speech
    • Moderate Swallowing
    • Moderate Upper Limb
    • Moderate Walking
    • Moderate Sensation
    completed the MSRS survey for Mar 14, 2012 Mar 14, 2012
  11. 1820-thumb
    StandUpLong
    Sex: F
    Data Quality: 0 stars
    Sensation: Severe
    Overall: Severe
    Cognition: moderate
    Vision: severe
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: severe
    I am: b
    I have:
    MS

    Good

    added an InstantMe for Dec 11, 2011 Dec 12, 2011 12:31AM

    Even here in Illinois the weather has quickly been cold , I am getting more sleep . Nights are enjoyable still .

  12. 1820-thumb
    StandUpLong
    Sex: F
    Data Quality: 0 stars
    Sensation: Severe
    Overall: Severe
    Cognition: moderate
    Vision: severe
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: severe
    I am: b
    I have:
    MS

    MSRS: 75

    • Moderate Cognition
    • Total Disability Vision
    • Mild Speech
    • Moderate Swallowing
    • Moderate Upper Limb
    • Moderate Walking
    • Moderate Sensation
    completed the MSRS survey for Dec 11, 2011 Dec 12, 2011
  13. 1820-thumb
    StandUpLong
    Sex: F
    Data Quality: 0 stars
    Sensation: Severe
    Overall: Severe
    Cognition: moderate
    Vision: severe
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: severe
    I am: b
    I have:
    MS

    QOL

    • Good Social
    • Good Mental
    • Bad Physical
    completed the QOL survey for Dec 11, 2011 Dec 12, 2011
  14. 1820-thumb
    StandUpLong
    Sex: F
    Data Quality: 0 stars
    Sensation: Severe
    Overall: Severe
    Cognition: moderate
    Vision: severe
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: severe
    I am: b
    I have:
    MS

    Good

    added an InstantMe for Dec 12, 2011 Dec 12, 2011 1:03AM
  15. 1820-thumb
    StandUpLong
    Sex: F
    Data Quality: 0 stars
    Sensation: Severe
    Overall: Severe
    Cognition: moderate
    Vision: severe
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: severe
    I am: b
    I have:
    MS

    Symptom Update

    updated her symptoms for Dec 12, 2011 Dec 11, 2011
  16. 1820-thumb
    StandUpLong
    Sex: F
    Data Quality: 0 stars
    Sensation: Severe
    Overall: Severe
    Cognition: moderate
    Vision: severe
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: severe
    I am: b
    I have:
    MS

    130 lb BMI: 23.8

    updated her weight for Nov 8, 2011 Nov 08, 2011
  17. 1820-thumb
    StandUpLong
    Sex: F
    Data Quality: 0 stars
    Sensation: Severe
    Overall: Severe
    Cognition: moderate
    Vision: severe
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: severe
    I am: b
    I have:
    MS

    QOL

    • Good Social
    • Bad Mental
    • Bad Physical
    completed the QOL survey for Nov 8, 2011 Nov 08, 2011
  18. 1820-thumb
    StandUpLong
    Sex: F
    Data Quality: 0 stars
    Sensation: Severe
    Overall: Severe
    Cognition: moderate
    Vision: severe
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: severe
    I am: b
    I have:
    MS

    MSRS: 89

    • Moderate Cognition
    • Total Disability Vision
    • Moderate Speech
    • Total Disability Swallowing
    • Moderate Upper Limb
    • Total Disability Walking
    • Total Disability Sensation
    completed the MSRS survey for Nov 8, 2011 Nov 08, 2011
  19. 1820-thumb
    StandUpLong
    Sex: F
    Data Quality: 0 stars
    Sensation: Severe
    Overall: Severe
    Cognition: moderate
    Vision: severe
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: severe
    I am: b
    I have:
    MS

    Updated Photo

    updated her profile picture Nov 08, 2011
  20. 1820-thumb
    StandUpLong
    Sex: F
    Data Quality: 0 stars
    Sensation: Severe
    Overall: Severe
    Cognition: moderate
    Vision: severe
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: severe
    I am: b
    I have:
    MS

    Symptom Update

    • none Weight gain
    • mild Light sensitivity (photophobia)
    • severe Loss of sense of taste
    • mild Shooting pain in head
    • moderate Lose train of thought
    • severe Hoarseness of voice
    • See more
    updated her symptoms for Nov 8, 2011 Nov 08, 2011
  21. Show more